1. What is Leucoderma / vitiligo?
Leucoderma is a relatively common skin disorder, in which
white spots or patches appear on the skin. These spots are caused by
destruction or weakening of the pigment cells in those areas, resulting in the
pigment being destroyed or no longer produced. Many doctors and researchers
believe that Leucoderma is an autoimmune-related disorder.. In Leucoderma, only
the colour of the skin is affected. The texture and other skin qualities remain
normal.
2. What does Leucoderma look like?
Leucoderma appears as uneven white patches on the skin, that
may vary from lighter tan to complete absence of pigment. Many people develop
Vitiligo bilaterally, in other words, if it appears on one elbow, it often
appears on the other elbow. Researchers do not completely understand why this
is. Others develop what is known as segmental vitiligo, where the patches
develop in only one area or on only one side of the body.
3. What is an autoimmune disorder?
An autoimmune disorder is any of a number of conditions in
which a person's immune system reacts against the body's own organs or tissues,
and the person's immune system produces antibodies to them. An autoimmune
disorder is NOT an "immune deficiency". In the case of Leucoderma, we
believe that the immune system probably sees the person's own pigment cells as
foreign bodies, and attacks them, destroying them or weakening them. Other
examples of autoimmune disorders include thyroid disorders and pernicious
anemia.
4. What is a Melanocyte (Pigment Cell)?
A Melanocyte is a specialized cell located in the skin,
which produces melanin (pigment). Surprisingly, all humans have roughly the
same number of pigment cells in their skin. Those with darker toned skin, have
pigment cells that are able to store more melanin within them. In the diagram
below, the cell with the tendrils, marked "I" is the melanocyte. The
brown color within the cell is the melanin. The cell uses the tendrils to
distribute the melanin evenly throughout the skin.
5.What is Melanin?
Melanin is a dark brown pigment of skin and hair in animals,
particularly vertebrates, derived from the amino acid tyrosine. It is
synthesized by special cells called Melanocytes, which also store the melanin.
6.What are the symptoms of Leucoderma?
People who develop Leucoderma usually first notice white
patches or spots depigmentation) on their skin. The skin remains of normal
texture, though very few people experience itching in areas where
depigmentation is occurring. The white patches are more obvious in sun-exposed
areas, including the hands, feet, arms, legs face, and lips. Other common areas
for white patches to appear are the armpits and groin and around the mouth,
eyes, nostrils, navel, and genitals. Leucoderma generally appears in one of
three patterns. In one pattern (focal pattern), the depigmentation is limited
to one or only a few areas. Some people develop depigmented patches on only one
side of their bodies (segmental vitiligo). For most people who have Leucoderma
depigmentation occurs on different parts of the body, in a bilateral pattern
(generalized vitiligo). In addition to white patches on the skin, few people
with Leucoderma may experience white hair growing in on the scalp, eyelashes,
eyebrows, and beard.
7. I have Leucoderma patches on my underarms, my feet and my
genitals. Is this common?
For reasons we don't really understand yet, there are
certain parts of the body, which are commonly affected in those who have
Leucoderma. The face, underarms, hands, wrists, fingers, feet, elbows, knees
and genitals are among these areas. There are many theories about why such
sensitive areas of the body seem to be commonly affected - the presence of many
nerve endings, the bony nature, sweat glands, etc.
8. How does Leucoderma develop?
The course and severity of pigment loss differ with each
person. In many cases, Leucoderma begins in a small area. Over time, other
spots may appear, while existing spots may grow larger. Some people notice that
their Leucoderma may stay the same for years or even decades, and then suddenly
new areas of depigmentation may occur. Occasionally, Leucoderma patches will
repigment spontaneously, all by themselves, with no treatment whatsoever. Many
people with Leucoderma do notice this happening at some point in their lives.
9. Is depigmentation ever accompanied by itching?
Few,though not all affected, do experience itching of the
skin prior to or while depigmentation is occurring. No research or studies have
suggested a reason for this.
10. Will the Leucoderma patches spread over time?
Will they get larger? In many, but certainly not all cases
,Leucoderma does progress slowly over time, but there is really no way to tell
whether your Leucoderma will progress or not. It is a slow progressing
condition however, and many affected report that they may go many years without
new patches developing, and then may discover new patches appearing years
later. Some people even report spots that spontaneously repigment, with no
treatment at all. Proper herbal medicines however, able to arrest new spots and
even repigment old one.
11. Is Leucoderma at all contagious?
Leucoderma is NOT contagious. If it were, many more people
in the world, including doctors who treat Leucoderma and family members of
those with Leucoderma, would have the condition. There are many theories about
what causes Leucoderma.
12. Where does the word "Vitiligo" come from?
It is believed that the word "vitiligo" comes from
Latin. The first part of the word, "viti" is from the Latin word
"vitium" meaning a mark or blemish. The suffix, "ligo" is a
common Latin ending meaning to bind or cause.
13. How do you pronounce the word "vitiligo"?
Many people pronounce this word incorrectly the first time
they see it. But to hear it correctly, say the words "Little I Go."
Then replace the first "L" with a "V" - giving you
"Vittle I Go." Run the words together and you have the correct
pronunciation.
14. What causes vitiligo?
Many believe that vitiligo is a type of autoimmune disorder,
in which the body's immune system sees the pigment cells in the skin as foreign
bodies, and attacks them. Other theories include the possibility that an
abnormally functioning nervous system may produce a substance that injures
melanocytes. Some believe that melanocytes in Leucoderma affected may
self-destruct, releasing toxic by products that then destroy other pigment
cells. We know that some cases of vitiligo arise from exposure to certain
chemicals, for example, phenols used in photography. Surgery wounds or injuries
to the skin have also been known to result in Leucoderma, which can spread.
Finally, there are alternative theories about Leucoderma that suggest diet,
nutrition, and digestive disorders may play a role in the destruction of
melanocytes. Some believe that internal pathogens within the digestive tract,
such as yeast proliferation, might relate to vitiligo.
15. What is oxidative stress?
This is one theory about what may cause or contribute to the
onset or exacerbation of vitiligo. Oxidative stress is an over-accumulation of
hydrogen peroxide in the skin. Every person develops hydrogen peroxide in the
skin, as a result of natural biological processes. An enzyme called
"catalase" normally breaks down the hydrogen peroxide in the skin
into water and oxygen. However, some people with vitiligo may have a problem
manufacturing, using or delivering catalase to the skin.
16. Is it true that genetics may play a part in Leucoderma?
Most experts believe that there is a genetic base to
Leucoderma which leads to susceptibility. In about only 12% of families where a
person has Leucoderma, the condition is seen in another family member. Any one
else may show signs of Leucoderma . 88% of Leucoderma affected have no family
history of Leucoderma
17. What is genetic susceptibility?
This is the theory that the susceptibility or predisposition
to vitiligo is genetic, and that some defect in the genetic structure, makes
people more susceptible to vitiligo. While we do see vitiligo in more than one
family member about 20% of the time, about 80% of patients report no other
family members with vitiligo. Many experts agree that not everyone who is
susceptible to vitiligo will necessarily develop it .
18. Is it true that exposure to certain chemicals can cause
Leucoderma?
Some chemicals, particularly photography chemicals such as
Phenols, can triggerLeucoderma in those who are susceptible. Phenols can also
be found in many types of hair colorings, household stains, and similar
products. There are other industrial chemicals and substances which may also
trigger the onset of Leucoderma.
19. Are there things that a person with vitiligo should
avoid?
In addition to the phenol type chemicals listed in the
previous paragraph, there are other things and activities which people with
vitiligo should avoid. Unfortunately, the list of activities, products and
chemicals to avoid varies, depending on who you talk to.
20. Are there any other symptoms?
Will Leucoderma lead to other conditions or diseases?Other
than the white patches of skin, there are no other physical symptoms of
Leucoderma. As a secondary effect, Leucoderma patches will tend to sunburn more
easily, and sunscreen is often recommended. Though some suggest eye color and
vision may be affected by Leucoderma experts indicate that any effect on eye
color or the retinal pigment is extremely rare, and any impairment of vision,
even rarer.
21.Are there other conditions related to Leucoderma?
Leucoderma itself does not appear to "lead" to
other conditions.
Some beleiveThyroid disorders (especially hypothyroidism)
are quite common in those with vitiligo, and Some doctors feel treating thyroid
disorders is important in treating vitiligo. Other related autoimmune
conditions are much rarer.Nevertheless, most people with vitiligo have no other
autoimmune disorders.
22. How is thyroid function related to Leucoderma?
Thyroid disorders are extremely common in every ethnic and
racial group on the planet. The thyroid is a small, butterfly-shaped gland just
below the Adam's apple. This gland plays an important role in controlling the
body's metabolism, that is, how the body functions. It does this by producing
thyroid hormones ,that travel through the blood to every part of the body.
Thyroid hormones tell the body how fast to work and use energy. Because
vitiligo may well be related to numerous functions within the body, a properly
functioning thyroid (or sufficient supplemental hormone) could be important in
treating Leucoderma.
23. Are there treatments I should not use if I am pregnant?
There are definitely some medications which will pass
through the placenta to your fetus. Ultraviolet light may also pose some risk.
If you are pregnant, you should definitely consult with both your
dermatologist, practitioners of Indian medicines regarding any risks to the
various types of treatments available for Leucoderma
24. If I am pregnant and have Leucoderma, will my child
developLeucoderma?
Most people with Leucoderma have no relatives with
Leucoderma. However,12 percentage of people with Leucoderma do have parents, or
siblings or children who develop Leucoderma that a genetic factor does appear
to exist.
25. Am I at greater risk for skin cancer because of my
Leucoderma?
While there is some disagreement in the medical community,
many Leucoderma experts believe there is not an increased risk for skin cancer
in Leucoderma affected. According to Pearl Grimes, MD, a leading medical expert
on Leucoderma, "the current data show no increase in skin cancer in
Leucoderma affected, both within the Leucoderma patches, or the normal
skin...either way."
26. is PUVA or UVB associated with an increase in skin
cancer in areas of Leucoderma?
Doctors say no. In psoriasis literature and articles, we do
see an increase in skin cancer for those treating with UV light. But this is
NOT the case for Leucoderma affected. In the case of Narrow Band UVB itself,
many suggest that UVB is less carcinogenic. More research and data are
required, since UVB and narrow band UVB are so new. But many doctors and
researchers feel that Narrow Band UVB is safer than other light options.
27. Who is affected by Leucoderma?
About 1 to 2 percent of the world's population, or from 50
to 100 million people, have Leucoderma. In India nearly 5 crore people have
this disorder. It is suspected that some countries may have higher incidents of
Leucoderma, for various genetic and societal reasons. Ninety-five percent of
people who have Leucoderma develop it before their 40th birthday, most between
the ages of 10 and 30. The disorder affects all races, ethnicities and both
sexes equally, which suggests that it truly is a human problem. Even on remote
islands where the population is completely homogenous, we see instances of
Leucoderma.
28. How long has Leucoderma existed?
We believe that Leucoderma has existed at least as long as
the recorded history of man, and probably before that, since similar conditions
are seen in many other animals. References to Leucoderma patches are mentioned
in the bible, and in ancient Chinese and Greek writings.
29. How is Leucoderma diagnosed?
If a doctor suspects that a person has Leucoderma, he or she
usually begins by asking the person about his or her medical history. Important
factors in a person's medical history are a family history of Leucoderma; a
rash, sunburn, or other skin trauma at the site of Leucoderma. In addition, the
doctor will need to know whether the affected or anyone in the victim's family
has had any autoimmune disorders and whether the affected is very sensitive to
the sun. The doctor will then examine the patient to rule out other medical
problems. The doctor may take a small sample (biopsy) of the affected skin. He
or she may also take a blood sample to check the blood-cell count and thyroid
function. The doctor may examine your skin with a special black light called a
Woods Light, which illuminates areas of Leucoderma. This also helps the doctor
rule out other conditions. For some affected, the doctor may recommend an eye
examination to check for uveitis (inflammation of part of the eye). A blood
test to look for the presence of antinuclear antibodies (a type of
autoantibody) may also be done. This test helps determine if the affected has
any other autoimmune conditions.
30. I was told Leucoderma could not be treated. Is that
correct?
Leucoderma is difficult to treat - that much is true. But in
the past few years, new treatments have been developed that are working good.
And there are more options .Leucoderma can be treated through herbals But
treatment can take time from 2years to 3 years or longer to see results.
31. I was told that Leucoderma was just cosmetic. Is that
right?
It's true that Leucoderma is not fatal, and that it has no
other physical symptoms other than white patches, the emotional and social
effects of Leucoderma on people are well-documented.
32. Are there any new treatments being worked on?
More research and development than ever before is being
conducted about Leucoderma and treating it through Indian system of medicines
33. What is a topical steroid cream or ointment?
Steroid creams come in different strengths.
Although still not completely understood, steroids may be
helpful in re pigmenting the skin, particularly if started early in the
condition and where only a few patches or spots need to be treated.. Doctors
often prescribe a mild topical steroid cream for children under 10 years old
and a stronger one for adults. affected must apply the cream to the white
patches on their skin for at least 3 months before seeing any results. It is
the simplest and safest treatment but not as effective as other herbal
treatments,good advice is go for herbal treatment that is absolutely risk
free.Steroids treatment must be carefully monitored, as steroids can thin and
damage the skin if not carefully watched. The doctor will closely monitor the
patient for side effects such as skin shrinkage and skin striae (stretch
marks). Because of the side effects, steroid creams should not be used for
extended periods of time.
34. What is a steroid?
Steroid is the Greek word for hormone. Some steroids occur
naturally in the body, such as cortisol, sex hormones, bile acids. Cortisol is
essential for all life. There are many kinds of steroids, Cortico, Glutico, Sex
Hormones and Anabolic steroids. Anabolic steroids are illegal. When synthetic
steroid hormones are prescribed and used correctly, they can be helpful, and
their side-effects can be reduced. But when safeguards are ignored, damage can
result.
35.What is topical psoralen therapy?
Topical psoralen photochemotherapy often is used for people with
a small number of depigmented patches (affecting less than 20 percent of the
body). It is also used for children 2 years old and older who have localized
patches of Leucoderma. Treatments are done in a doctor's office under
artificial UVA light once or twice a week. The doctor or nurse applies a thin
coat of psoralen to the victim's depigmented patches about 30 minutes before
UVA light exposure. The affected is then exposed to an amount of UVA light that
turns the affected area pink. The doctor usually increases the dose of UVA
light slowly over many weeks. Eventually, the pink areas fade and a more normal
skin color appears. Most victimss wash off any topical residue after treatment.
The two major potential side effects of topical psoralen therapy are severe
sunburn and blistering and occasionally too much repigmentation or darkening of
the treated area or the normal skin surrounding the leucoderma
(hyperpigmentation).
36. What is skin grafting?
In an autologous (use of a person’s own tissues) skin graft,
the doctor removes skin from one area of a victim's body and attaches it to
another area. This type of skin grafting is sometimes used for affected with
small patches of Leucoderma. The doctor removes sections of the normal,
pigmented skin (donor sites) and places them on the depigmented areas
(recipient sites). There are several possible complications of autologous skin
grafting. Infections may occur at the donor or recipient sites. The recipient
and donor sites may develop scarring or an uneven appearance, or may fail to
repigment at all. Treatment with grafting takes time and is costly.
37. What is autologous melanocyte transplant?
In this procedure, the doctor takes a sample of the victim's
normally pigmented skin and places it in a laboratory dish containing a special
cell culture solution to grow melanocytes. When the melanocytes in the culture
solution have multiplied, the doctor transplants them to the patient's
depigmented skin patches. A fairly new technology, this procedure is still in the
experimental stages.
38. What is Melagenina?
Melagenina (now Melagenina Plus) was developed in Cuba about
20 years ago, using human placenta tissue. They may now use other animal
placental tissues. The company in Cuba that markets it claims high success
rates, but these cannot be substantiated, and many people have claimed no
results at all. The product instructions indicate that application of the cream
should be several times a day, followed by 15 minutes of natural sunlight. In
1998, Melagenina Plus was announced, which unlike the previous treatment
requires only once daily application and does not require exposure to the sun.
39. What is depigmentation?
Depigmentation involves fading the rest of the skin on the
body to match the already white areas. For people who have Leucoderma on more
than 50 percent of their body, depigmentation may be the best treatment option.
Victims must avoid direct skin-to-skin contact with other people for at least 2
hours after applying the drug. The major side effect of depigmentation therapy
is inflammation (redness and swelling) of the skin. Affected may experience
itching or dry skin. Depigmentation is generally permanent and cannot be
reversed. In addition, a person who undergoes depigmentation will always be
unusually sensitive to sunlight.
40. How do I find a doctor that treats Leucoderma?
The best way to find a solution for Leucoderma consult
LEUCODERMA AWARENESS MOVEMENT at 044 2226 5507 or 044 6538 1157,there you can
avail good counseling medication by professionals to disappear Leucoderma.
41. Are there parts of the body that are harder to treat
than others?
For some reason, certain parts of the body, including the
hands, feet, and some areas where the hair has turned white, do seem to be
harder to treat than other areas. However, many of today's brightest experts in
the treatment of Leucoderma, maintain that ANY Leucoderma spot can be
repigmented, and even hair repigmented, with enough work and dedication. Those
who have Leucoderma should contact LEUCODERMA AWARENESS MOVEMENT and avail
result oriented HERBAL treatment.
42. Can tanning beds (solariums) be used in place of PUVA or
Narrow Band UVB?
Many experts suggest that tanning beds (also known as
tanning booths and solariums) not be used in place of PUVA lamps or Narrow Band
UVB lamps or even natural sunlight. The problem with tanning beds is that the
lamps in these devices usually emit a much stronger, broader spectrum of UV
rays, and may not be as safe or effective for people treating Leucoderma, and
may result in severe burning or other side effects.
43. Can the genitals be treated?
Obviously a sensitive subject, but many people with
Leucoderma have the same question.. The reality is, a substancial number of
people with Leucoderma (estimated at 30 to 40 percent) do experience at least
some (if not extensive) Leucoderma on their genitals. For many people, this can
have an effect on their own esteem, and in their social and sexual lives.The
genitalia can be treated and are in many cases responsive to treatment.
Traditional therapies, such as Herbal medicines and food restriction, have been
used to treat the genitals, both male and female.
44. Is it safe to use all treatments on the face and around
the eyes?
Medicines suggested in traditional therapies have no harm.As
with all ointments and creams, you want to discuss this with your doctor. The
greatest risk to the eyes from Leucoderma treatment is UV exposure. Prior to
any treatment with UV light, it is wise to have a full Ophthalmic exam.
45. Once a spot repigments, is it permanent? Will I have to
treat my Leucoderma forever?
Right now,(in allopathy) the products available for treating
Leucoderma, seem to be addressing the symptom of Leucoderma (the spots), and
not the underlying cause, which we still don't completely understand. Once a
spot has been repigmented, some people report that the new pigment lasts a long
time, and many do not report any relapse of that spot. Some affected feel that
if you can get a spot to "close," meaning, to be repigmented
completely to the naked eye, that it will have a better chance of staying
repigmented. Still, a significant number of people report that after
repigmenting, and then stopping treatment, that over time, from a few months to
a decade or longer, the areas start to lose pigment again.
At the same time, the alternative practitioners understood
well the underlying cause of Leucoderma. Therefore, you can begin herbal based
treatment by Indian Medicine practitioners as soon as possible..( you can avail
treatment from LEUCODERMA CLINIC run by LEUCODERMA AWARENESS MOVEMENT.) This is
also something important to consider. we treat the CAUSE of our Leucoderma,
rather than just the symptoms.
46. Why bother treating at all if permanence of
repigmentation is not guaranteed?
This is a common thought for those with Leucoderma. Why
should we attempt to treat at all, and spend the money, if the permanence of
our new pigment is not guaranteed? There are several reasons. First, for many
people, simply making some attempt to repigment, in of itself, is a powerful
emotional tool in dealing with their Leucoderma. Second, it is clear that the
larger area of vitiligo, or the more extensive vitiligo is on a person, the
harder it may be, and the longer it may take to repigment.
47. What if my health insurance won't cover my Leucoderma
treatments?
Many health insurance companies will initially reject
treatments for Leucoderma or will approve only some, because they claim the
condition is only cosmetic. Of course we know that's not fully true. The key
with insurance companies, is to be persistent until you achieve success. Until
health insurance companies universally begin accepting Leucoderma as a
legitimate medical condition that affects psychological and physical
well-being, in addition to susceptibility to sunburn, this is how it must be
done.The first step, is to have your doctor write a letter to the insurance
company, explaining Leucoderma, explaining the psycho-social effect, and the
physical risks of Leucoderma, such as serious sunburn. This is often
sufficient, but it will be more convincing if you follow up with a letter of
your own to the health insurance approval dept. Sometimes it will take more
letters, phone calls, and supporting evidence, but if you are persistent, most insurance
companies, will eventually give in, rather than have to receive any more
letters and calls from you.
48. What research is being done on Leucoderma?
There is probably more research being conducted today in the
area of Leucoderma, than ever before. From the genetic basis of autoimmune
disorders, to the structure of the skin, and understanding the immune system,
studies are now being conducted which may yield more information about the
nature and causes of Leucoderma, and how to treat it more effectively.
49. How can I help?
LEUCODERMA AWARENESS MOVEMENT committed to supporting those
affected by Leucoderma raising awareness, promoting research, and discussing
effective treatments until a solution is found.. You can help support our
efforts in various level. Please call LEUCODERMA AWARENESS MOVEMENT.
50. Will they ever find a treatment or a cure that works
well for everyone?
Because people are different, and because there are thought
to be many different causes of Leucoderma, different treatments work better for
different people.
51. Are there cosmetics available to cover Leucoderma spots?
Yes, there are many products out there to provide excellent
camouflage of Leucoderma spots. Some people prefer traditional waterproof
makeup, designed to match every skin tone, and which can be applied to the
spots only. Though they are waterproof, they are not always friction proof, and
some men will not wear them. These types of covers are available in every skin
tone, from very fair to dark black.
52. Is it true that I can make my own safe skin-colored
stain to cover the spots?
Yes! Some affected of Leucoderma have created their own safe
homemade skin stain, made entirely out of herbals and ordinary Food Coloring.
By mixing the ingredients together, a brownish color results, and the tone can
easily be adjusted to match your skin.
53. Is it safe for someone with Leucoderma to use hair dyes
or bleaches?
No, it is not safe. Experts recommend that if you have
Leucoderma, you should avoid hair colorings and bleaches. Chemicals in these
products called Phenols may cause the onset or further spreading of Leucoderma.
Temporary hair colourings however, such as henna, which do not contain phenols
or phenol derivatives, are generally accepted as safe. When in doubt, you
should consult with your physician.
54. Should I use sunscreen?
It is always a good idea for people with Leucoderma to use
sunscreen,(Better use Umbrella) whenever they will be spending more than a few
minutes in the sun. Besides the need to protect the skin from severe sunburn,
sunscreen will keep non-Leucoderma affected areas from tanning, thus helping
you to avoid the contrast that results between tanned areas, and Leucoderma
spots.
55. What about sun-protective clothing?
Sun protective clothing can be a good addition or
alternative to using sunscreens. Since sun protective clothing is an easy way
to protect your skin from the sun without using chemicals such as those found
in sunscreens, it is becoming more popular. This clothing is rated by a UPF (ultraviolet
protection factor) rather than a SPF (sun protection factor), as it protects
from both UVA and UVB rays. A garment with a UPF of 50 would block 98% of all
UVA and UVB rays. Sun protective clothing can be found for men, women, and
children, along with hats and sun protective swimwear.
56. How do I deal with the emotional issues of Leucoderma?
The change in appearance caused by Leucoderma can affect a
person's emotional and psychological well-being and may create difficulty in
professional and social situations. People with Leucoderma can experience
emotional stress, particularly if Leucoderma develops on visible areas of the
body, such as the face, hands, arms, feet, or on the genitals. Adolescents, who
are often particularly concerned about their appearance, can be devastated by
widespread Leucoderma. Some people who have Leucoderma feel embarrassed,
ashamed, depressed, or worried about how others will react.Several strategies
can help a person cope with Leucoderma. First, it is important to find a doctor
who is knowledgeable about Leucoderma and takes the disorder seriously. The
doctor should also be a good listener and be able to provide emotional support.
Affected should also learn as much as possible about the disorder and treatment
choices so that they can participate in making important decisions about
medical care. LEUCODERMA AWARENESS MOVEMENT provides counseling and treatment
through dedicated professional of this field.Talking with other people who have
leucoderma can help a person cope with the disorder. LEUCODERMA AWARENESS
MOVEMENT provides AWARENESS DOCUMENTARY, PAMPLETS,BOOKLETS for this very
purpose, and most members here have found them an invaluable source of support.
Relatives, family and friends are another important source of support.Finally,
counseling with a registered practitioners can help you examine your fears,
improve your self esteem, and find ways to deal with the emotional and social
issues that everyone with Leucoderma faces.
57. People stare at my spots. I am embarrassed by my
Leucoderma. Is there anything I can do?
First, understand that to most people, Leucoderma is
unusual, and perhaps a bit unsettling. Do not be afraid to tell people what it
is, especially children. Kids are pretty smart these days, and everyone can
understand if you explain that Leucoderma is a condition in which the immune
system sees the pigment cells as foreign bodies, and attacks them (our best
explanation). Explain that it does not hurt, and that it is a genetic
condition, and is not contagious.Finally, try to maintain a normal lifestyle.
If you enjoy sports, or swimming, then you should continue to engage in these
activities (remembering sunscreen where appropriate). Don't avoid social
situations and parties - these are good for your psychological well-being. In
the old days, many people thought Leucoderma was the result of burns or
chemical spills. But people are becoming more aware about Leucoderma and it
seems that almost everyone knows someone with the condition.
58. How do I explain Leucoderma to people? Should I even
bother?
We suggest that you be honest and open, and explain to
people that Leucoderma is a genetic condition, in which the body's immune
system sees pigment cells as foreign bodies, and attacks them. Explain that it
is a rather common condition, that it does not hurt or itch, and that it is not
contagious. Finally, explain to them that treatment for the condition is
improving. When they realize that this is a condition just like every other
miserable condition humans inherit, they are less likely to be afraid of it.
59. I have a child with Leucoderma. What should I do?
Children usually cope best with Leucoderma when their
parent(s) is/are prepared to talk about the condition as openly and truthfully
as possible. To pretend you haven't noticed something so obvious may make it
difficult for your child to talk to you about it. Because this is often so
difficult for parents to cope with, especially as relates to other children, it
is important to talk with teachers, and to be conscious if your child is being
teased or bullied. Support your child, and encourage them to get involve with
activities and hobbies. Teach them that it is OK to be different, and that it
doesn't make them any less important. An useful documentary on Leucoderma
awareness available at LEUCODERMA AWARENESS MOVEMENT completely free of cost ,
get it and ask your children to watch.
60. I am afraid I might lose my job because of my
Leucoderma. What should I do?
Under our land of law, all citizens are protected from
discrimination in their work or from being fired based on medical conditions or
illness. If you feel that you have been discriminated against because of your
Leucoderma, then you should consult an advocate (or contact LEUCODERMA
AWARENESS MOVEMENT ) specializing in labour law.
61. I'm afraid my spouse or significant other won't be
attracted to me because of my Leucoderma. What should I do?
Relationship issues are without question one of the most
important social problems that come up with Leucoderma. People with Leucoderma
are frequently concerned that they will no longer be attractive to their
significant others, partners or spouses. What we find to be the case most
often, is that the partners of people with Leucoderma are not terribly concerned
about the Leucoderma, and often say that it does not bother them. So learn to
communicate with your partner or spouse, express your concerns and fears.
Another possibility is to make yourself attractive in other ways.
62. I feel self-conscious and uncomfortable at places like
the beach ,marriage halls, swimming pools and other social gatherings What can
I do?
Don't avoid the beach, social gatherings or swimming pools
just because of your Leucoderma. Do not allow Leucoderma to interfere with the
joy of living. From a physical aspect, it may make sense to go swimming and to
the beach in the later afternoons, when the sun is not as strong. If it makes
you feel better, wear stain or waterproof makeup cover. And if people ask about
the Leucoderma, you should explain it to them just as indicated above.
63. How do I find a good counselor or psychotherapist to
help me with the emotional issues?
When ever you feel distressed feel free to call LEUCODERMA
AWARENESS MOVEMENT. Second to that, you should try to take medicine to
disappear the conditions which affect your appearance. People at LEUCODERMA
AWARENESS MOVEMENT help you to deal with Leucoderma, both inwardly and
socially, and can work with you to maintain your self-esteem and pride.
POSTED BY LEUCODERMA AWARENESS1. What is Leucoderma / vitiligo?
Leucoderma is a relatively common skin disorder, in which
white spots or patches appear on the skin. These spots are caused by
destruction or weakening of the pigment cells in those areas, resulting in the
pigment being destroyed or no longer produced. Many doctors and researchers
believe that Leucoderma is an autoimmune-related disorder.. In Leucoderma, only
the colour of the skin is affected. The texture and other skin qualities remain
normal.
2. What does Leucoderma look like?
Leucoderma appears as uneven white patches on the skin, that
may vary from lighter tan to complete absence of pigment. Many people develop
Vitiligo bilaterally, in other words, if it appears on one elbow, it often
appears on the other elbow. Researchers do not completely understand why this
is. Others develop what is known as segmental vitiligo, where the patches
develop in only one area or on only one side of the body.
3. What is an autoimmune disorder?
An autoimmune disorder is any of a number of conditions in
which a person's immune system reacts against the body's own organs or tissues,
and the person's immune system produces antibodies to them. An autoimmune
disorder is NOT an "immune deficiency". In the case of Leucoderma, we
believe that the immune system probably sees the person's own pigment cells as
foreign bodies, and attacks them, destroying them or weakening them. Other
examples of autoimmune disorders include thyroid disorders and pernicious
anemia.
4. What is a Melanocyte (Pigment Cell)?
A Melanocyte is a specialized cell located in the skin,
which produces melanin (pigment). Surprisingly, all humans have roughly the
same number of pigment cells in their skin. Those with darker toned skin, have
pigment cells that are able to store more melanin within them. In the diagram
below, the cell with the tendrils, marked "I" is the melanocyte. The
brown color within the cell is the melanin. The cell uses the tendrils to
distribute the melanin evenly throughout the skin.
5.What is Melanin?
Melanin is a dark brown pigment of skin and hair in animals,
particularly vertebrates, derived from the amino acid tyrosine. It is
synthesized by special cells called Melanocytes, which also store the melanin.
6.What are the symptoms of Leucoderma?
People who develop Leucoderma usually first notice white
patches or spots depigmentation) on their skin. The skin remains of normal
texture, though very few people experience itching in areas where
depigmentation is occurring. The white patches are more obvious in sun-exposed
areas, including the hands, feet, arms, legs face, and lips. Other common areas
for white patches to appear are the armpits and groin and around the mouth,
eyes, nostrils, navel, and genitals. Leucoderma generally appears in one of
three patterns. In one pattern (focal pattern), the depigmentation is limited
to one or only a few areas. Some people develop depigmented patches on only one
side of their bodies (segmental vitiligo). For most people who have Leucoderma
depigmentation occurs on different parts of the body, in a bilateral pattern
(generalized vitiligo). In addition to white patches on the skin, few people
with Leucoderma may experience white hair growing in on the scalp, eyelashes,
eyebrows, and beard.
7. I have Leucoderma patches on my underarms, my feet and my
genitals. Is this common?
For reasons we don't really understand yet, there are
certain parts of the body, which are commonly affected in those who have
Leucoderma. The face, underarms, hands, wrists, fingers, feet, elbows, knees
and genitals are among these areas. There are many theories about why such
sensitive areas of the body seem to be commonly affected - the presence of many
nerve endings, the bony nature, sweat glands, etc.
8. How does Leucoderma develop?
The course and severity of pigment loss differ with each
person. In many cases, Leucoderma begins in a small area. Over time, other
spots may appear, while existing spots may grow larger. Some people notice that
their Leucoderma may stay the same for years or even decades, and then suddenly
new areas of depigmentation may occur. Occasionally, Leucoderma patches will
repigment spontaneously, all by themselves, with no treatment whatsoever. Many
people with Leucoderma do notice this happening at some point in their lives.
9. Is depigmentation ever accompanied by itching?
Few,though not all affected, do experience itching of the
skin prior to or while depigmentation is occurring. No research or studies have
suggested a reason for this.
10. Will the Leucoderma patches spread over time?
Will they get larger? In many, but certainly not all cases
,Leucoderma does progress slowly over time, but there is really no way to tell
whether your Leucoderma will progress or not. It is a slow progressing
condition however, and many affected report that they may go many years without
new patches developing, and then may discover new patches appearing years
later. Some people even report spots that spontaneously repigment, with no
treatment at all. Proper herbal medicines however, able to arrest new spots and
even repigment old one.
11. Is Leucoderma at all contagious?
Leucoderma is NOT contagious. If it were, many more people
in the world, including doctors who treat Leucoderma and family members of
those with Leucoderma, would have the condition. There are many theories about
what causes Leucoderma.
12. Where does the word "Vitiligo" come from?
It is believed that the word "vitiligo" comes from
Latin. The first part of the word, "viti" is from the Latin word
"vitium" meaning a mark or blemish. The suffix, "ligo" is a
common Latin ending meaning to bind or cause.
13. How do you pronounce the word "vitiligo"?
Many people pronounce this word incorrectly the first time
they see it. But to hear it correctly, say the words "Little I Go."
Then replace the first "L" with a "V" - giving you
"Vittle I Go." Run the words together and you have the correct
pronunciation.
14. What causes vitiligo?
Many believe that vitiligo is a type of autoimmune disorder,
in which the body's immune system sees the pigment cells in the skin as foreign
bodies, and attacks them. Other theories include the possibility that an
abnormally functioning nervous system may produce a substance that injures
melanocytes. Some believe that melanocytes in Leucoderma affected may
self-destruct, releasing toxic by products that then destroy other pigment
cells. We know that some cases of vitiligo arise from exposure to certain
chemicals, for example, phenols used in photography. Surgery wounds or injuries
to the skin have also been known to result in Leucoderma, which can spread.
Finally, there are alternative theories about Leucoderma that suggest diet,
nutrition, and digestive disorders may play a role in the destruction of
melanocytes. Some believe that internal pathogens within the digestive tract,
such as yeast proliferation, might relate to vitiligo.
15. What is oxidative stress?
This is one theory about what may cause or contribute to the
onset or exacerbation of vitiligo. Oxidative stress is an over-accumulation of
hydrogen peroxide in the skin. Every person develops hydrogen peroxide in the
skin, as a result of natural biological processes. An enzyme called
"catalase" normally breaks down the hydrogen peroxide in the skin
into water and oxygen. However, some people with vitiligo may have a problem
manufacturing, using or delivering catalase to the skin.
16. Is it true that genetics may play a part in Leucoderma?
Most experts believe that there is a genetic base to
Leucoderma which leads to susceptibility. In about only 12% of families where a
person has Leucoderma, the condition is seen in another family member. Any one
else may show signs of Leucoderma . 88% of Leucoderma affected have no family
history of Leucoderma
17. What is genetic susceptibility?
This is the theory that the susceptibility or predisposition
to vitiligo is genetic, and that some defect in the genetic structure, makes
people more susceptible to vitiligo. While we do see vitiligo in more than one
family member about 20% of the time, about 80% of patients report no other
family members with vitiligo. Many experts agree that not everyone who is
susceptible to vitiligo will necessarily develop it .
18. Is it true that exposure to certain chemicals can cause
Leucoderma?
Some chemicals, particularly photography chemicals such as
Phenols, can triggerLeucoderma in those who are susceptible. Phenols can also
be found in many types of hair colorings, household stains, and similar
products. There are other industrial chemicals and substances which may also
trigger the onset of Leucoderma.
19. Are there things that a person with vitiligo should
avoid?
In addition to the phenol type chemicals listed in the
previous paragraph, there are other things and activities which people with
vitiligo should avoid. Unfortunately, the list of activities, products and
chemicals to avoid varies, depending on who you talk to.
20. Are there any other symptoms?
Will Leucoderma lead to other conditions or diseases?Other
than the white patches of skin, there are no other physical symptoms of
Leucoderma. As a secondary effect, Leucoderma patches will tend to sunburn more
easily, and sunscreen is often recommended. Though some suggest eye color and
vision may be affected by Leucoderma experts indicate that any effect on eye
color or the retinal pigment is extremely rare, and any impairment of vision,
even rarer.
21.Are there other conditions related to Leucoderma?
Leucoderma itself does not appear to "lead" to
other conditions.
Some beleiveThyroid disorders (especially hypothyroidism)
are quite common in those with vitiligo, and Some doctors feel treating thyroid
disorders is important in treating vitiligo. Other related autoimmune
conditions are much rarer.Nevertheless, most people with vitiligo have no other
autoimmune disorders.
22. How is thyroid function related to Leucoderma?
Thyroid disorders are extremely common in every ethnic and
racial group on the planet. The thyroid is a small, butterfly-shaped gland just
below the Adam's apple. This gland plays an important role in controlling the
body's metabolism, that is, how the body functions. It does this by producing
thyroid hormones ,that travel through the blood to every part of the body.
Thyroid hormones tell the body how fast to work and use energy. Because
vitiligo may well be related to numerous functions within the body, a properly
functioning thyroid (or sufficient supplemental hormone) could be important in
treating Leucoderma.
23. Are there treatments I should not use if I am pregnant?
There are definitely some medications which will pass
through the placenta to your fetus. Ultraviolet light may also pose some risk.
If you are pregnant, you should definitely consult with both your
dermatologist, practitioners of Indian medicines regarding any risks to the
various types of treatments available for Leucoderma
24. If I am pregnant and have Leucoderma, will my child
developLeucoderma?
Most people with Leucoderma have no relatives with
Leucoderma. However,12 percentage of people with Leucoderma do have parents, or
siblings or children who develop Leucoderma that a genetic factor does appear
to exist.
25. Am I at greater risk for skin cancer because of my
Leucoderma?
While there is some disagreement in the medical community,
many Leucoderma experts believe there is not an increased risk for skin cancer
in Leucoderma affected. According to Pearl Grimes, MD, a leading medical expert
on Leucoderma, "the current data show no increase in skin cancer in
Leucoderma affected, both within the Leucoderma patches, or the normal
skin...either way."
26. is PUVA or UVB associated with an increase in skin
cancer in areas of Leucoderma?
Doctors say no. In psoriasis literature and articles, we do
see an increase in skin cancer for those treating with UV light. But this is
NOT the case for Leucoderma affected. In the case of Narrow Band UVB itself,
many suggest that UVB is less carcinogenic. More research and data are
required, since UVB and narrow band UVB are so new. But many doctors and
researchers feel that Narrow Band UVB is safer than other light options.
27. Who is affected by Leucoderma?
About 1 to 2 percent of the world's population, or from 50
to 100 million people, have Leucoderma. In India nearly 5 crore people have
this disorder. It is suspected that some countries may have higher incidents of
Leucoderma, for various genetic and societal reasons. Ninety-five percent of
people who have Leucoderma develop it before their 40th birthday, most between
the ages of 10 and 30. The disorder affects all races, ethnicities and both
sexes equally, which suggests that it truly is a human problem. Even on remote
islands where the population is completely homogenous, we see instances of
Leucoderma.
28. How long has Leucoderma existed?
We believe that Leucoderma has existed at least as long as
the recorded history of man, and probably before that, since similar conditions
are seen in many other animals. References to Leucoderma patches are mentioned
in the bible, and in ancient Chinese and Greek writings.
29. How is Leucoderma diagnosed?
If a doctor suspects that a person has Leucoderma, he or she
usually begins by asking the person about his or her medical history. Important
factors in a person's medical history are a family history of Leucoderma; a
rash, sunburn, or other skin trauma at the site of Leucoderma. In addition, the
doctor will need to know whether the affected or anyone in the victim's family
has had any autoimmune disorders and whether the affected is very sensitive to
the sun. The doctor will then examine the patient to rule out other medical
problems. The doctor may take a small sample (biopsy) of the affected skin. He
or she may also take a blood sample to check the blood-cell count and thyroid
function. The doctor may examine your skin with a special black light called a
Woods Light, which illuminates areas of Leucoderma. This also helps the doctor
rule out other conditions. For some affected, the doctor may recommend an eye
examination to check for uveitis (inflammation of part of the eye). A blood
test to look for the presence of antinuclear antibodies (a type of
autoantibody) may also be done. This test helps determine if the affected has
any other autoimmune conditions.
30. I was told Leucoderma could not be treated. Is that
correct?
Leucoderma is difficult to treat - that much is true. But in
the past few years, new treatments have been developed that are working good.
And there are more options .Leucoderma can be treated through herbals But
treatment can take time from 2years to 3 years or longer to see results.
31. I was told that Leucoderma was just cosmetic. Is that
right?
It's true that Leucoderma is not fatal, and that it has no
other physical symptoms other than white patches, the emotional and social
effects of Leucoderma on people are well-documented.
32. Are there any new treatments being worked on?
More research and development than ever before is being
conducted about Leucoderma and treating it through Indian system of medicines
33. What is a topical steroid cream or ointment?
Steroid creams come in different strengths.
Although still not completely understood, steroids may be
helpful in re pigmenting the skin, particularly if started early in the
condition and where only a few patches or spots need to be treated.. Doctors
often prescribe a mild topical steroid cream for children under 10 years old
and a stronger one for adults. affected must apply the cream to the white
patches on their skin for at least 3 months before seeing any results. It is
the simplest and safest treatment but not as effective as other herbal
treatments,good advice is go for herbal treatment that is absolutely risk
free.Steroids treatment must be carefully monitored, as steroids can thin and
damage the skin if not carefully watched. The doctor will closely monitor the
patient for side effects such as skin shrinkage and skin striae (stretch
marks). Because of the side effects, steroid creams should not be used for
extended periods of time.
34. What is a steroid?
Steroid is the Greek word for hormone. Some steroids occur
naturally in the body, such as cortisol, sex hormones, bile acids. Cortisol is
essential for all life. There are many kinds of steroids, Cortico, Glutico, Sex
Hormones and Anabolic steroids. Anabolic steroids are illegal. When synthetic
steroid hormones are prescribed and used correctly, they can be helpful, and
their side-effects can be reduced. But when safeguards are ignored, damage can
result.
35.What is topical psoralen therapy?
Topical psoralen photochemotherapy often is used for people with
a small number of depigmented patches (affecting less than 20 percent of the
body). It is also used for children 2 years old and older who have localized
patches of Leucoderma. Treatments are done in a doctor's office under
artificial UVA light once or twice a week. The doctor or nurse applies a thin
coat of psoralen to the victim's depigmented patches about 30 minutes before
UVA light exposure. The affected is then exposed to an amount of UVA light that
turns the affected area pink. The doctor usually increases the dose of UVA
light slowly over many weeks. Eventually, the pink areas fade and a more normal
skin color appears. Most victimss wash off any topical residue after treatment.
The two major potential side effects of topical psoralen therapy are severe
sunburn and blistering and occasionally too much repigmentation or darkening of
the treated area or the normal skin surrounding the leucoderma
(hyperpigmentation).
36. What is skin grafting?
In an autologous (use of a person’s own tissues) skin graft,
the doctor removes skin from one area of a victim's body and attaches it to
another area. This type of skin grafting is sometimes used for affected with
small patches of Leucoderma. The doctor removes sections of the normal,
pigmented skin (donor sites) and places them on the depigmented areas
(recipient sites). There are several possible complications of autologous skin
grafting. Infections may occur at the donor or recipient sites. The recipient
and donor sites may develop scarring or an uneven appearance, or may fail to
repigment at all. Treatment with grafting takes time and is costly.
37. What is autologous melanocyte transplant?
In this procedure, the doctor takes a sample of the victim's
normally pigmented skin and places it in a laboratory dish containing a special
cell culture solution to grow melanocytes. When the melanocytes in the culture
solution have multiplied, the doctor transplants them to the patient's
depigmented skin patches. A fairly new technology, this procedure is still in the
experimental stages.
38. What is Melagenina?
Melagenina (now Melagenina Plus) was developed in Cuba about
20 years ago, using human placenta tissue. They may now use other animal
placental tissues. The company in Cuba that markets it claims high success
rates, but these cannot be substantiated, and many people have claimed no
results at all. The product instructions indicate that application of the cream
should be several times a day, followed by 15 minutes of natural sunlight. In
1998, Melagenina Plus was announced, which unlike the previous treatment
requires only once daily application and does not require exposure to the sun.
39. What is depigmentation?
Depigmentation involves fading the rest of the skin on the
body to match the already white areas. For people who have Leucoderma on more
than 50 percent of their body, depigmentation may be the best treatment option.
Victims must avoid direct skin-to-skin contact with other people for at least 2
hours after applying the drug. The major side effect of depigmentation therapy
is inflammation (redness and swelling) of the skin. Affected may experience
itching or dry skin. Depigmentation is generally permanent and cannot be
reversed. In addition, a person who undergoes depigmentation will always be
unusually sensitive to sunlight.
40. How do I find a doctor that treats Leucoderma?
The best way to find a solution for Leucoderma consult
LEUCODERMA AWARENESS MOVEMENT at 044 2226 5507 or 044 6538 1157,there you can
avail good counseling medication by professionals to disappear Leucoderma.
41. Are there parts of the body that are harder to treat
than others?
For some reason, certain parts of the body, including the
hands, feet, and some areas where the hair has turned white, do seem to be
harder to treat than other areas. However, many of today's brightest experts in
the treatment of Leucoderma, maintain that ANY Leucoderma spot can be
repigmented, and even hair repigmented, with enough work and dedication. Those
who have Leucoderma should contact LEUCODERMA AWARENESS MOVEMENT and avail
result oriented HERBAL treatment.
42. Can tanning beds (solariums) be used in place of PUVA or
Narrow Band UVB?
Many experts suggest that tanning beds (also known as
tanning booths and solariums) not be used in place of PUVA lamps or Narrow Band
UVB lamps or even natural sunlight. The problem with tanning beds is that the
lamps in these devices usually emit a much stronger, broader spectrum of UV
rays, and may not be as safe or effective for people treating Leucoderma, and
may result in severe burning or other side effects.
43. Can the genitals be treated?
Obviously a sensitive subject, but many people with
Leucoderma have the same question.. The reality is, a substancial number of
people with Leucoderma (estimated at 30 to 40 percent) do experience at least
some (if not extensive) Leucoderma on their genitals. For many people, this can
have an effect on their own esteem, and in their social and sexual lives.The
genitalia can be treated and are in many cases responsive to treatment.
Traditional therapies, such as Herbal medicines and food restriction, have been
used to treat the genitals, both male and female.
44. Is it safe to use all treatments on the face and around
the eyes?
Medicines suggested in traditional therapies have no harm.As
with all ointments and creams, you want to discuss this with your doctor. The
greatest risk to the eyes from Leucoderma treatment is UV exposure. Prior to
any treatment with UV light, it is wise to have a full Ophthalmic exam.
45. Once a spot repigments, is it permanent? Will I have to
treat my Leucoderma forever?
Right now,(in allopathy) the products available for treating
Leucoderma, seem to be addressing the symptom of Leucoderma (the spots), and
not the underlying cause, which we still don't completely understand. Once a
spot has been repigmented, some people report that the new pigment lasts a long
time, and many do not report any relapse of that spot. Some affected feel that
if you can get a spot to "close," meaning, to be repigmented
completely to the naked eye, that it will have a better chance of staying
repigmented. Still, a significant number of people report that after
repigmenting, and then stopping treatment, that over time, from a few months to
a decade or longer, the areas start to lose pigment again.
At the same time, the alternative practitioners understood
well the underlying cause of Leucoderma. Therefore, you can begin herbal based
treatment by Indian Medicine practitioners as soon as possible..( you can avail
treatment from LEUCODERMA CLINIC run by LEUCODERMA AWARENESS MOVEMENT.) This is
also something important to consider. we treat the CAUSE of our Leucoderma,
rather than just the symptoms.
46. Why bother treating at all if permanence of
repigmentation is not guaranteed?
This is a common thought for those with Leucoderma. Why
should we attempt to treat at all, and spend the money, if the permanence of
our new pigment is not guaranteed? There are several reasons. First, for many
people, simply making some attempt to repigment, in of itself, is a powerful
emotional tool in dealing with their Leucoderma. Second, it is clear that the
larger area of vitiligo, or the more extensive vitiligo is on a person, the
harder it may be, and the longer it may take to repigment.
47. What if my health insurance won't cover my Leucoderma
treatments?
Many health insurance companies will initially reject
treatments for Leucoderma or will approve only some, because they claim the
condition is only cosmetic. Of course we know that's not fully true. The key
with insurance companies, is to be persistent until you achieve success. Until
health insurance companies universally begin accepting Leucoderma as a
legitimate medical condition that affects psychological and physical
well-being, in addition to susceptibility to sunburn, this is how it must be
done.The first step, is to have your doctor write a letter to the insurance
company, explaining Leucoderma, explaining the psycho-social effect, and the
physical risks of Leucoderma, such as serious sunburn. This is often
sufficient, but it will be more convincing if you follow up with a letter of
your own to the health insurance approval dept. Sometimes it will take more
letters, phone calls, and supporting evidence, but if you are persistent, most insurance
companies, will eventually give in, rather than have to receive any more
letters and calls from you.
48. What research is being done on Leucoderma?
There is probably more research being conducted today in the
area of Leucoderma, than ever before. From the genetic basis of autoimmune
disorders, to the structure of the skin, and understanding the immune system,
studies are now being conducted which may yield more information about the
nature and causes of Leucoderma, and how to treat it more effectively.
49. How can I help?
LEUCODERMA AWARENESS MOVEMENT committed to supporting those
affected by Leucoderma raising awareness, promoting research, and discussing
effective treatments until a solution is found.. You can help support our
efforts in various level. Please call LEUCODERMA AWARENESS MOVEMENT.
50. Will they ever find a treatment or a cure that works
well for everyone?
Because people are different, and because there are thought
to be many different causes of Leucoderma, different treatments work better for
different people.
51. Are there cosmetics available to cover Leucoderma spots?
Yes, there are many products out there to provide excellent
camouflage of Leucoderma spots. Some people prefer traditional waterproof
makeup, designed to match every skin tone, and which can be applied to the
spots only. Though they are waterproof, they are not always friction proof, and
some men will not wear them. These types of covers are available in every skin
tone, from very fair to dark black.
52. Is it true that I can make my own safe skin-colored
stain to cover the spots?
Yes! Some affected of Leucoderma have created their own safe
homemade skin stain, made entirely out of herbals and ordinary Food Coloring.
By mixing the ingredients together, a brownish color results, and the tone can
easily be adjusted to match your skin.
53. Is it safe for someone with Leucoderma to use hair dyes
or bleaches?
No, it is not safe. Experts recommend that if you have
Leucoderma, you should avoid hair colorings and bleaches. Chemicals in these
products called Phenols may cause the onset or further spreading of Leucoderma.
Temporary hair colourings however, such as henna, which do not contain phenols
or phenol derivatives, are generally accepted as safe. When in doubt, you
should consult with your physician.
54. Should I use sunscreen?
It is always a good idea for people with Leucoderma to use
sunscreen,(Better use Umbrella) whenever they will be spending more than a few
minutes in the sun. Besides the need to protect the skin from severe sunburn,
sunscreen will keep non-Leucoderma affected areas from tanning, thus helping
you to avoid the contrast that results between tanned areas, and Leucoderma
spots.
55. What about sun-protective clothing?
Sun protective clothing can be a good addition or
alternative to using sunscreens. Since sun protective clothing is an easy way
to protect your skin from the sun without using chemicals such as those found
in sunscreens, it is becoming more popular. This clothing is rated by a UPF (ultraviolet
protection factor) rather than a SPF (sun protection factor), as it protects
from both UVA and UVB rays. A garment with a UPF of 50 would block 98% of all
UVA and UVB rays. Sun protective clothing can be found for men, women, and
children, along with hats and sun protective swimwear.
56. How do I deal with the emotional issues of Leucoderma?
The change in appearance caused by Leucoderma can affect a
person's emotional and psychological well-being and may create difficulty in
professional and social situations. People with Leucoderma can experience
emotional stress, particularly if Leucoderma develops on visible areas of the
body, such as the face, hands, arms, feet, or on the genitals. Adolescents, who
are often particularly concerned about their appearance, can be devastated by
widespread Leucoderma. Some people who have Leucoderma feel embarrassed,
ashamed, depressed, or worried about how others will react.Several strategies
can help a person cope with Leucoderma. First, it is important to find a doctor
who is knowledgeable about Leucoderma and takes the disorder seriously. The
doctor should also be a good listener and be able to provide emotional support.
Affected should also learn as much as possible about the disorder and treatment
choices so that they can participate in making important decisions about
medical care. LEUCODERMA AWARENESS MOVEMENT provides counseling and treatment
through dedicated professional of this field.Talking with other people who have
leucoderma can help a person cope with the disorder. LEUCODERMA AWARENESS
MOVEMENT provides AWARENESS DOCUMENTARY, PAMPLETS,BOOKLETS for this very
purpose, and most members here have found them an invaluable source of support.
Relatives, family and friends are another important source of support.Finally,
counseling with a registered practitioners can help you examine your fears,
improve your self esteem, and find ways to deal with the emotional and social
issues that everyone with Leucoderma faces.
57. People stare at my spots. I am embarrassed by my
Leucoderma. Is there anything I can do?
First, understand that to most people, Leucoderma is
unusual, and perhaps a bit unsettling. Do not be afraid to tell people what it
is, especially children. Kids are pretty smart these days, and everyone can
understand if you explain that Leucoderma is a condition in which the immune
system sees the pigment cells as foreign bodies, and attacks them (our best
explanation). Explain that it does not hurt, and that it is a genetic
condition, and is not contagious.Finally, try to maintain a normal lifestyle.
If you enjoy sports, or swimming, then you should continue to engage in these
activities (remembering sunscreen where appropriate). Don't avoid social
situations and parties - these are good for your psychological well-being. In
the old days, many people thought Leucoderma was the result of burns or
chemical spills. But people are becoming more aware about Leucoderma and it
seems that almost everyone knows someone with the condition.
58. How do I explain Leucoderma to people? Should I even
bother?
We suggest that you be honest and open, and explain to
people that Leucoderma is a genetic condition, in which the body's immune
system sees pigment cells as foreign bodies, and attacks them. Explain that it
is a rather common condition, that it does not hurt or itch, and that it is not
contagious. Finally, explain to them that treatment for the condition is
improving. When they realize that this is a condition just like every other
miserable condition humans inherit, they are less likely to be afraid of it.
59. I have a child with Leucoderma. What should I do?
Children usually cope best with Leucoderma when their
parent(s) is/are prepared to talk about the condition as openly and truthfully
as possible. To pretend you haven't noticed something so obvious may make it
difficult for your child to talk to you about it. Because this is often so
difficult for parents to cope with, especially as relates to other children, it
is important to talk with teachers, and to be conscious if your child is being
teased or bullied. Support your child, and encourage them to get involve with
activities and hobbies. Teach them that it is OK to be different, and that it
doesn't make them any less important. An useful documentary on Leucoderma
awareness available at LEUCODERMA AWARENESS MOVEMENT completely free of cost ,
get it and ask your children to watch.
60. I am afraid I might lose my job because of my
Leucoderma. What should I do?
Under our land of law, all citizens are protected from
discrimination in their work or from being fired based on medical conditions or
illness. If you feel that you have been discriminated against because of your
Leucoderma, then you should consult an advocate (or contact LEUCODERMA
AWARENESS MOVEMENT ) specializing in labour law.
61. I'm afraid my spouse or significant other won't be
attracted to me because of my Leucoderma. What should I do?
Relationship issues are without question one of the most
important social problems that come up with Leucoderma. People with Leucoderma
are frequently concerned that they will no longer be attractive to their
significant others, partners or spouses. What we find to be the case most
often, is that the partners of people with Leucoderma are not terribly concerned
about the Leucoderma, and often say that it does not bother them. So learn to
communicate with your partner or spouse, express your concerns and fears.
Another possibility is to make yourself attractive in other ways.
62. I feel self-conscious and uncomfortable at places like
the beach ,marriage halls, swimming pools and other social gatherings What can
I do?
Don't avoid the beach, social gatherings or swimming pools
just because of your Leucoderma. Do not allow Leucoderma to interfere with the
joy of living. From a physical aspect, it may make sense to go swimming and to
the beach in the later afternoons, when the sun is not as strong. If it makes
you feel better, wear stain or waterproof makeup cover. And if people ask about
the Leucoderma, you should explain it to them just as indicated above.
63. How do I find a good counselor or psychotherapist to
help me with the emotional issues?
When ever you feel distressed feel free to call LEUCODERMA
AWARENESS MOVEMENT. Second to that, you should try to take medicine to
disappear the conditions which affect your appearance. People at LEUCODERMA
AWARENESS MOVEMENT help you to deal with Leucoderma, both inwardly and
socially, and can work with you to maintain your self-esteem and pride.
POSTED BY LEUCODERMA AWARENESS1. What is Leucoderma / vitiligo?
Leucoderma is a relatively common skin disorder, in which
white spots or patches appear on the skin. These spots are caused by
destruction or weakening of the pigment cells in those areas, resulting in the
pigment being destroyed or no longer produced. Many doctors and researchers
believe that Leucoderma is an autoimmune-related disorder.. In Leucoderma, only
the colour of the skin is affected. The texture and other skin qualities remain
normal.
2. What does Leucoderma look like?
Leucoderma appears as uneven white patches on the skin, that
may vary from lighter tan to complete absence of pigment. Many people develop
Vitiligo bilaterally, in other words, if it appears on one elbow, it often
appears on the other elbow. Researchers do not completely understand why this
is. Others develop what is known as segmental vitiligo, where the patches
develop in only one area or on only one side of the body.
3. What is an autoimmune disorder?
An autoimmune disorder is any of a number of conditions in
which a person's immune system reacts against the body's own organs or tissues,
and the person's immune system produces antibodies to them. An autoimmune
disorder is NOT an "immune deficiency". In the case of Leucoderma, we
believe that the immune system probably sees the person's own pigment cells as
foreign bodies, and attacks them, destroying them or weakening them. Other
examples of autoimmune disorders include thyroid disorders and pernicious
anemia.
4. What is a Melanocyte (Pigment Cell)?
A Melanocyte is a specialized cell located in the skin,
which produces melanin (pigment). Surprisingly, all humans have roughly the
same number of pigment cells in their skin. Those with darker toned skin, have
pigment cells that are able to store more melanin within them. In the diagram
below, the cell with the tendrils, marked "I" is the melanocyte. The
brown color within the cell is the melanin. The cell uses the tendrils to
distribute the melanin evenly throughout the skin.
5.What is Melanin?
Melanin is a dark brown pigment of skin and hair in animals,
particularly vertebrates, derived from the amino acid tyrosine. It is
synthesized by special cells called Melanocytes, which also store the melanin.
6.What are the symptoms of Leucoderma?
People who develop Leucoderma usually first notice white
patches or spots depigmentation) on their skin. The skin remains of normal
texture, though very few people experience itching in areas where
depigmentation is occurring. The white patches are more obvious in sun-exposed
areas, including the hands, feet, arms, legs face, and lips. Other common areas
for white patches to appear are the armpits and groin and around the mouth,
eyes, nostrils, navel, and genitals. Leucoderma generally appears in one of
three patterns. In one pattern (focal pattern), the depigmentation is limited
to one or only a few areas. Some people develop depigmented patches on only one
side of their bodies (segmental vitiligo). For most people who have Leucoderma
depigmentation occurs on different parts of the body, in a bilateral pattern
(generalized vitiligo). In addition to white patches on the skin, few people
with Leucoderma may experience white hair growing in on the scalp, eyelashes,
eyebrows, and beard.
7. I have Leucoderma patches on my underarms, my feet and my
genitals. Is this common?
For reasons we don't really understand yet, there are
certain parts of the body, which are commonly affected in those who have
Leucoderma. The face, underarms, hands, wrists, fingers, feet, elbows, knees
and genitals are among these areas. There are many theories about why such
sensitive areas of the body seem to be commonly affected - the presence of many
nerve endings, the bony nature, sweat glands, etc.
8. How does Leucoderma develop?
The course and severity of pigment loss differ with each
person. In many cases, Leucoderma begins in a small area. Over time, other
spots may appear, while existing spots may grow larger. Some people notice that
their Leucoderma may stay the same for years or even decades, and then suddenly
new areas of depigmentation may occur. Occasionally, Leucoderma patches will
repigment spontaneously, all by themselves, with no treatment whatsoever. Many
people with Leucoderma do notice this happening at some point in their lives.
9. Is depigmentation ever accompanied by itching?
Few,though not all affected, do experience itching of the
skin prior to or while depigmentation is occurring. No research or studies have
suggested a reason for this.
10. Will the Leucoderma patches spread over time?
Will they get larger? In many, but certainly not all cases
,Leucoderma does progress slowly over time, but there is really no way to tell
whether your Leucoderma will progress or not. It is a slow progressing
condition however, and many affected report that they may go many years without
new patches developing, and then may discover new patches appearing years
later. Some people even report spots that spontaneously repigment, with no
treatment at all. Proper herbal medicines however, able to arrest new spots and
even repigment old one.
11. Is Leucoderma at all contagious?
Leucoderma is NOT contagious. If it were, many more people
in the world, including doctors who treat Leucoderma and family members of
those with Leucoderma, would have the condition. There are many theories about
what causes Leucoderma.
12. Where does the word "Vitiligo" come from?
It is believed that the word "vitiligo" comes from
Latin. The first part of the word, "viti" is from the Latin word
"vitium" meaning a mark or blemish. The suffix, "ligo" is a
common Latin ending meaning to bind or cause.
13. How do you pronounce the word "vitiligo"?
Many people pronounce this word incorrectly the first time
they see it. But to hear it correctly, say the words "Little I Go."
Then replace the first "L" with a "V" - giving you
"Vittle I Go." Run the words together and you have the correct
pronunciation.
14. What causes vitiligo?
Many believe that vitiligo is a type of autoimmune disorder,
in which the body's immune system sees the pigment cells in the skin as foreign
bodies, and attacks them. Other theories include the possibility that an
abnormally functioning nervous system may produce a substance that injures
melanocytes. Some believe that melanocytes in Leucoderma affected may
self-destruct, releasing toxic by products that then destroy other pigment
cells. We know that some cases of vitiligo arise from exposure to certain
chemicals, for example, phenols used in photography. Surgery wounds or injuries
to the skin have also been known to result in Leucoderma, which can spread.
Finally, there are alternative theories about Leucoderma that suggest diet,
nutrition, and digestive disorders may play a role in the destruction of
melanocytes. Some believe that internal pathogens within the digestive tract,
such as yeast proliferation, might relate to vitiligo.
15. What is oxidative stress?
This is one theory about what may cause or contribute to the
onset or exacerbation of vitiligo. Oxidative stress is an over-accumulation of
hydrogen peroxide in the skin. Every person develops hydrogen peroxide in the
skin, as a result of natural biological processes. An enzyme called
"catalase" normally breaks down the hydrogen peroxide in the skin
into water and oxygen. However, some people with vitiligo may have a problem
manufacturing, using or delivering catalase to the skin.
16. Is it true that genetics may play a part in Leucoderma?
Most experts believe that there is a genetic base to
Leucoderma which leads to susceptibility. In about only 12% of families where a
person has Leucoderma, the condition is seen in another family member. Any one
else may show signs of Leucoderma . 88% of Leucoderma affected have no family
history of Leucoderma
17. What is genetic susceptibility?
This is the theory that the susceptibility or predisposition
to vitiligo is genetic, and that some defect in the genetic structure, makes
people more susceptible to vitiligo. While we do see vitiligo in more than one
family member about 20% of the time, about 80% of patients report no other
family members with vitiligo. Many experts agree that not everyone who is
susceptible to vitiligo will necessarily develop it .
18. Is it true that exposure to certain chemicals can cause
Leucoderma?
Some chemicals, particularly photography chemicals such as
Phenols, can triggerLeucoderma in those who are susceptible. Phenols can also
be found in many types of hair colorings, household stains, and similar
products. There are other industrial chemicals and substances which may also
trigger the onset of Leucoderma.
19. Are there things that a person with vitiligo should
avoid?
In addition to the phenol type chemicals listed in the
previous paragraph, there are other things and activities which people with
vitiligo should avoid. Unfortunately, the list of activities, products and
chemicals to avoid varies, depending on who you talk to.
20. Are there any other symptoms?
Will Leucoderma lead to other conditions or diseases?Other
than the white patches of skin, there are no other physical symptoms of
Leucoderma. As a secondary effect, Leucoderma patches will tend to sunburn more
easily, and sunscreen is often recommended. Though some suggest eye color and
vision may be affected by Leucoderma experts indicate that any effect on eye
color or the retinal pigment is extremely rare, and any impairment of vision,
even rarer.
21.Are there other conditions related to Leucoderma?
Leucoderma itself does not appear to "lead" to
other conditions.
Some beleiveThyroid disorders (especially hypothyroidism)
are quite common in those with vitiligo, and Some doctors feel treating thyroid
disorders is important in treating vitiligo. Other related autoimmune
conditions are much rarer.Nevertheless, most people with vitiligo have no other
autoimmune disorders.
22. How is thyroid function related to Leucoderma?
Thyroid disorders are extremely common in every ethnic and
racial group on the planet. The thyroid is a small, butterfly-shaped gland just
below the Adam's apple. This gland plays an important role in controlling the
body's metabolism, that is, how the body functions. It does this by producing
thyroid hormones ,that travel through the blood to every part of the body.
Thyroid hormones tell the body how fast to work and use energy. Because
vitiligo may well be related to numerous functions within the body, a properly
functioning thyroid (or sufficient supplemental hormone) could be important in
treating Leucoderma.
23. Are there treatments I should not use if I am pregnant?
There are definitely some medications which will pass
through the placenta to your fetus. Ultraviolet light may also pose some risk.
If you are pregnant, you should definitely consult with both your
dermatologist, practitioners of Indian medicines regarding any risks to the
various types of treatments available for Leucoderma
24. If I am pregnant and have Leucoderma, will my child
developLeucoderma?
Most people with Leucoderma have no relatives with
Leucoderma. However,12 percentage of people with Leucoderma do have parents, or
siblings or children who develop Leucoderma that a genetic factor does appear
to exist.
25. Am I at greater risk for skin cancer because of my
Leucoderma?
While there is some disagreement in the medical community,
many Leucoderma experts believe there is not an increased risk for skin cancer
in Leucoderma affected. According to Pearl Grimes, MD, a leading medical expert
on Leucoderma, "the current data show no increase in skin cancer in
Leucoderma affected, both within the Leucoderma patches, or the normal
skin...either way."
26. is PUVA or UVB associated with an increase in skin
cancer in areas of Leucoderma?
Doctors say no. In psoriasis literature and articles, we do
see an increase in skin cancer for those treating with UV light. But this is
NOT the case for Leucoderma affected. In the case of Narrow Band UVB itself,
many suggest that UVB is less carcinogenic. More research and data are
required, since UVB and narrow band UVB are so new. But many doctors and
researchers feel that Narrow Band UVB is safer than other light options.
27. Who is affected by Leucoderma?
About 1 to 2 percent of the world's population, or from 50
to 100 million people, have Leucoderma. In India nearly 5 crore people have
this disorder. It is suspected that some countries may have higher incidents of
Leucoderma, for various genetic and societal reasons. Ninety-five percent of
people who have Leucoderma develop it before their 40th birthday, most between
the ages of 10 and 30. The disorder affects all races, ethnicities and both
sexes equally, which suggests that it truly is a human problem. Even on remote
islands where the population is completely homogenous, we see instances of
Leucoderma.
28. How long has Leucoderma existed?
We believe that Leucoderma has existed at least as long as
the recorded history of man, and probably before that, since similar conditions
are seen in many other animals. References to Leucoderma patches are mentioned
in the bible, and in ancient Chinese and Greek writings.
29. How is Leucoderma diagnosed?
If a doctor suspects that a person has Leucoderma, he or she
usually begins by asking the person about his or her medical history. Important
factors in a person's medical history are a family history of Leucoderma; a
rash, sunburn, or other skin trauma at the site of Leucoderma. In addition, the
doctor will need to know whether the affected or anyone in the victim's family
has had any autoimmune disorders and whether the affected is very sensitive to
the sun. The doctor will then examine the patient to rule out other medical
problems. The doctor may take a small sample (biopsy) of the affected skin. He
or she may also take a blood sample to check the blood-cell count and thyroid
function. The doctor may examine your skin with a special black light called a
Woods Light, which illuminates areas of Leucoderma. This also helps the doctor
rule out other conditions. For some affected, the doctor may recommend an eye
examination to check for uveitis (inflammation of part of the eye). A blood
test to look for the presence of antinuclear antibodies (a type of
autoantibody) may also be done. This test helps determine if the affected has
any other autoimmune conditions.
30. I was told Leucoderma could not be treated. Is that
correct?
Leucoderma is difficult to treat - that much is true. But in
the past few years, new treatments have been developed that are working good.
And there are more options .Leucoderma can be treated through herbals But
treatment can take time from 2years to 3 years or longer to see results.
31. I was told that Leucoderma was just cosmetic. Is that
right?
It's true that Leucoderma is not fatal, and that it has no
other physical symptoms other than white patches, the emotional and social
effects of Leucoderma on people are well-documented.
32. Are there any new treatments being worked on?
More research and development than ever before is being
conducted about Leucoderma and treating it through Indian system of medicines
33. What is a topical steroid cream or ointment?
Steroid creams come in different strengths.
Although still not completely understood, steroids may be
helpful in re pigmenting the skin, particularly if started early in the
condition and where only a few patches or spots need to be treated.. Doctors
often prescribe a mild topical steroid cream for children under 10 years old
and a stronger one for adults. affected must apply the cream to the white
patches on their skin for at least 3 months before seeing any results. It is
the simplest and safest treatment but not as effective as other herbal
treatments,good advice is go for herbal treatment that is absolutely risk
free.Steroids treatment must be carefully monitored, as steroids can thin and
damage the skin if not carefully watched. The doctor will closely monitor the
patient for side effects such as skin shrinkage and skin striae (stretch
marks). Because of the side effects, steroid creams should not be used for
extended periods of time.
34. What is a steroid?
Steroid is the Greek word for hormone. Some steroids occur
naturally in the body, such as cortisol, sex hormones, bile acids. Cortisol is
essential for all life. There are many kinds of steroids, Cortico, Glutico, Sex
Hormones and Anabolic steroids. Anabolic steroids are illegal. When synthetic
steroid hormones are prescribed and used correctly, they can be helpful, and
their side-effects can be reduced. But when safeguards are ignored, damage can
result.
35.What is topical psoralen therapy?
Topical psoralen photochemotherapy often is used for people with
a small number of depigmented patches (affecting less than 20 percent of the
body). It is also used for children 2 years old and older who have localized
patches of Leucoderma. Treatments are done in a doctor's office under
artificial UVA light once or twice a week. The doctor or nurse applies a thin
coat of psoralen to the victim's depigmented patches about 30 minutes before
UVA light exposure. The affected is then exposed to an amount of UVA light that
turns the affected area pink. The doctor usually increases the dose of UVA
light slowly over many weeks. Eventually, the pink areas fade and a more normal
skin color appears. Most victimss wash off any topical residue after treatment.
The two major potential side effects of topical psoralen therapy are severe
sunburn and blistering and occasionally too much repigmentation or darkening of
the treated area or the normal skin surrounding the leucoderma
(hyperpigmentation).
36. What is skin grafting?
In an autologous (use of a person’s own tissues) skin graft,
the doctor removes skin from one area of a victim's body and attaches it to
another area. This type of skin grafting is sometimes used for affected with
small patches of Leucoderma. The doctor removes sections of the normal,
pigmented skin (donor sites) and places them on the depigmented areas
(recipient sites). There are several possible complications of autologous skin
grafting. Infections may occur at the donor or recipient sites. The recipient
and donor sites may develop scarring or an uneven appearance, or may fail to
repigment at all. Treatment with grafting takes time and is costly.
37. What is autologous melanocyte transplant?
In this procedure, the doctor takes a sample of the victim's
normally pigmented skin and places it in a laboratory dish containing a special
cell culture solution to grow melanocytes. When the melanocytes in the culture
solution have multiplied, the doctor transplants them to the patient's
depigmented skin patches. A fairly new technology, this procedure is still in the
experimental stages.
38. What is Melagenina?
Melagenina (now Melagenina Plus) was developed in Cuba about
20 years ago, using human placenta tissue. They may now use other animal
placental tissues. The company in Cuba that markets it claims high success
rates, but these cannot be substantiated, and many people have claimed no
results at all. The product instructions indicate that application of the cream
should be several times a day, followed by 15 minutes of natural sunlight. In
1998, Melagenina Plus was announced, which unlike the previous treatment
requires only once daily application and does not require exposure to the sun.
39. What is depigmentation?
Depigmentation involves fading the rest of the skin on the
body to match the already white areas. For people who have Leucoderma on more
than 50 percent of their body, depigmentation may be the best treatment option.
Victims must avoid direct skin-to-skin contact with other people for at least 2
hours after applying the drug. The major side effect of depigmentation therapy
is inflammation (redness and swelling) of the skin. Affected may experience
itching or dry skin. Depigmentation is generally permanent and cannot be
reversed. In addition, a person who undergoes depigmentation will always be
unusually sensitive to sunlight.
40. How do I find a doctor that treats Leucoderma?
The best way to find a solution for Leucoderma consult
LEUCODERMA AWARENESS MOVEMENT at 044 2226 5507 or 044 6538 1157,there you can
avail good counseling medication by professionals to disappear Leucoderma.
41. Are there parts of the body that are harder to treat
than others?
For some reason, certain parts of the body, including the
hands, feet, and some areas where the hair has turned white, do seem to be
harder to treat than other areas. However, many of today's brightest experts in
the treatment of Leucoderma, maintain that ANY Leucoderma spot can be
repigmented, and even hair repigmented, with enough work and dedication. Those
who have Leucoderma should contact LEUCODERMA AWARENESS MOVEMENT and avail
result oriented HERBAL treatment.
42. Can tanning beds (solariums) be used in place of PUVA or
Narrow Band UVB?
Many experts suggest that tanning beds (also known as
tanning booths and solariums) not be used in place of PUVA lamps or Narrow Band
UVB lamps or even natural sunlight. The problem with tanning beds is that the
lamps in these devices usually emit a much stronger, broader spectrum of UV
rays, and may not be as safe or effective for people treating Leucoderma, and
may result in severe burning or other side effects.
43. Can the genitals be treated?
Obviously a sensitive subject, but many people with
Leucoderma have the same question.. The reality is, a substancial number of
people with Leucoderma (estimated at 30 to 40 percent) do experience at least
some (if not extensive) Leucoderma on their genitals. For many people, this can
have an effect on their own esteem, and in their social and sexual lives.The
genitalia can be treated and are in many cases responsive to treatment.
Traditional therapies, such as Herbal medicines and food restriction, have been
used to treat the genitals, both male and female.
44. Is it safe to use all treatments on the face and around
the eyes?
Medicines suggested in traditional therapies have no harm.As
with all ointments and creams, you want to discuss this with your doctor. The
greatest risk to the eyes from Leucoderma treatment is UV exposure. Prior to
any treatment with UV light, it is wise to have a full Ophthalmic exam.
45. Once a spot repigments, is it permanent? Will I have to
treat my Leucoderma forever?
Right now,(in allopathy) the products available for treating
Leucoderma, seem to be addressing the symptom of Leucoderma (the spots), and
not the underlying cause, which we still don't completely understand. Once a
spot has been repigmented, some people report that the new pigment lasts a long
time, and many do not report any relapse of that spot. Some affected feel that
if you can get a spot to "close," meaning, to be repigmented
completely to the naked eye, that it will have a better chance of staying
repigmented. Still, a significant number of people report that after
repigmenting, and then stopping treatment, that over time, from a few months to
a decade or longer, the areas start to lose pigment again.
At the same time, the alternative practitioners understood
well the underlying cause of Leucoderma. Therefore, you can begin herbal based
treatment by Indian Medicine practitioners as soon as possible..( you can avail
treatment from LEUCODERMA CLINIC run by LEUCODERMA AWARENESS MOVEMENT.) This is
also something important to consider. we treat the CAUSE of our Leucoderma,
rather than just the symptoms.
46. Why bother treating at all if permanence of
repigmentation is not guaranteed?
This is a common thought for those with Leucoderma. Why
should we attempt to treat at all, and spend the money, if the permanence of
our new pigment is not guaranteed? There are several reasons. First, for many
people, simply making some attempt to repigment, in of itself, is a powerful
emotional tool in dealing with their Leucoderma. Second, it is clear that the
larger area of vitiligo, or the more extensive vitiligo is on a person, the
harder it may be, and the longer it may take to repigment.
47. What if my health insurance won't cover my Leucoderma
treatments?
Many health insurance companies will initially reject
treatments for Leucoderma or will approve only some, because they claim the
condition is only cosmetic. Of course we know that's not fully true. The key
with insurance companies, is to be persistent until you achieve success. Until
health insurance companies universally begin accepting Leucoderma as a
legitimate medical condition that affects psychological and physical
well-being, in addition to susceptibility to sunburn, this is how it must be
done.The first step, is to have your doctor write a letter to the insurance
company, explaining Leucoderma, explaining the psycho-social effect, and the
physical risks of Leucoderma, such as serious sunburn. This is often
sufficient, but it will be more convincing if you follow up with a letter of
your own to the health insurance approval dept. Sometimes it will take more
letters, phone calls, and supporting evidence, but if you are persistent, most insurance
companies, will eventually give in, rather than have to receive any more
letters and calls from you.
48. What research is being done on Leucoderma?
There is probably more research being conducted today in the
area of Leucoderma, than ever before. From the genetic basis of autoimmune
disorders, to the structure of the skin, and understanding the immune system,
studies are now being conducted which may yield more information about the
nature and causes of Leucoderma, and how to treat it more effectively.
49. How can I help?
LEUCODERMA AWARENESS MOVEMENT committed to supporting those
affected by Leucoderma raising awareness, promoting research, and discussing
effective treatments until a solution is found.. You can help support our
efforts in various level. Please call LEUCODERMA AWARENESS MOVEMENT.
50. Will they ever find a treatment or a cure that works
well for everyone?
Because people are different, and because there are thought
to be many different causes of Leucoderma, different treatments work better for
different people.
51. Are there cosmetics available to cover Leucoderma spots?
Yes, there are many products out there to provide excellent
camouflage of Leucoderma spots. Some people prefer traditional waterproof
makeup, designed to match every skin tone, and which can be applied to the
spots only. Though they are waterproof, they are not always friction proof, and
some men will not wear them. These types of covers are available in every skin
tone, from very fair to dark black.
52. Is it true that I can make my own safe skin-colored
stain to cover the spots?
Yes! Some affected of Leucoderma have created their own safe
homemade skin stain, made entirely out of herbals and ordinary Food Coloring.
By mixing the ingredients together, a brownish color results, and the tone can
easily be adjusted to match your skin.
53. Is it safe for someone with Leucoderma to use hair dyes
or bleaches?
No, it is not safe. Experts recommend that if you have
Leucoderma, you should avoid hair colorings and bleaches. Chemicals in these
products called Phenols may cause the onset or further spreading of Leucoderma.
Temporary hair colourings however, such as henna, which do not contain phenols
or phenol derivatives, are generally accepted as safe. When in doubt, you
should consult with your physician.
54. Should I use sunscreen?
It is always a good idea for people with Leucoderma to use
sunscreen,(Better use Umbrella) whenever they will be spending more than a few
minutes in the sun. Besides the need to protect the skin from severe sunburn,
sunscreen will keep non-Leucoderma affected areas from tanning, thus helping
you to avoid the contrast that results between tanned areas, and Leucoderma
spots.
55. What about sun-protective clothing?
Sun protective clothing can be a good addition or
alternative to using sunscreens. Since sun protective clothing is an easy way
to protect your skin from the sun without using chemicals such as those found
in sunscreens, it is becoming more popular. This clothing is rated by a UPF (ultraviolet
protection factor) rather than a SPF (sun protection factor), as it protects
from both UVA and UVB rays. A garment with a UPF of 50 would block 98% of all
UVA and UVB rays. Sun protective clothing can be found for men, women, and
children, along with hats and sun protective swimwear.
56. How do I deal with the emotional issues of Leucoderma?
The change in appearance caused by Leucoderma can affect a
person's emotional and psychological well-being and may create difficulty in
professional and social situations. People with Leucoderma can experience
emotional stress, particularly if Leucoderma develops on visible areas of the
body, such as the face, hands, arms, feet, or on the genitals. Adolescents, who
are often particularly concerned about their appearance, can be devastated by
widespread Leucoderma. Some people who have Leucoderma feel embarrassed,
ashamed, depressed, or worried about how others will react.Several strategies
can help a person cope with Leucoderma. First, it is important to find a doctor
who is knowledgeable about Leucoderma and takes the disorder seriously. The
doctor should also be a good listener and be able to provide emotional support.
Affected should also learn as much as possible about the disorder and treatment
choices so that they can participate in making important decisions about
medical care. LEUCODERMA AWARENESS MOVEMENT provides counseling and treatment
through dedicated professional of this field.Talking with other people who have
leucoderma can help a person cope with the disorder. LEUCODERMA AWARENESS
MOVEMENT provides AWARENESS DOCUMENTARY, PAMPLETS,BOOKLETS for this very
purpose, and most members here have found them an invaluable source of support.
Relatives, family and friends are another important source of support.Finally,
counseling with a registered practitioners can help you examine your fears,
improve your self esteem, and find ways to deal with the emotional and social
issues that everyone with Leucoderma faces.
57. People stare at my spots. I am embarrassed by my
Leucoderma. Is there anything I can do?
First, understand that to most people, Leucoderma is
unusual, and perhaps a bit unsettling. Do not be afraid to tell people what it
is, especially children. Kids are pretty smart these days, and everyone can
understand if you explain that Leucoderma is a condition in which the immune
system sees the pigment cells as foreign bodies, and attacks them (our best
explanation). Explain that it does not hurt, and that it is a genetic
condition, and is not contagious.Finally, try to maintain a normal lifestyle.
If you enjoy sports, or swimming, then you should continue to engage in these
activities (remembering sunscreen where appropriate). Don't avoid social
situations and parties - these are good for your psychological well-being. In
the old days, many people thought Leucoderma was the result of burns or
chemical spills. But people are becoming more aware about Leucoderma and it
seems that almost everyone knows someone with the condition.
58. How do I explain Leucoderma to people? Should I even
bother?
We suggest that you be honest and open, and explain to
people that Leucoderma is a genetic condition, in which the body's immune
system sees pigment cells as foreign bodies, and attacks them. Explain that it
is a rather common condition, that it does not hurt or itch, and that it is not
contagious. Finally, explain to them that treatment for the condition is
improving. When they realize that this is a condition just like every other
miserable condition humans inherit, they are less likely to be afraid of it.
59. I have a child with Leucoderma. What should I do?
Children usually cope best with Leucoderma when their
parent(s) is/are prepared to talk about the condition as openly and truthfully
as possible. To pretend you haven't noticed something so obvious may make it
difficult for your child to talk to you about it. Because this is often so
difficult for parents to cope with, especially as relates to other children, it
is important to talk with teachers, and to be conscious if your child is being
teased or bullied. Support your child, and encourage them to get involve with
activities and hobbies. Teach them that it is OK to be different, and that it
doesn't make them any less important. An useful documentary on Leucoderma
awareness available at LEUCODERMA AWARENESS MOVEMENT completely free of cost ,
get it and ask your children to watch.
60. I am afraid I might lose my job because of my
Leucoderma. What should I do?
Under our land of law, all citizens are protected from
discrimination in their work or from being fired based on medical conditions or
illness. If you feel that you have been discriminated against because of your
Leucoderma, then you should consult an advocate (or contact LEUCODERMA
AWARENESS MOVEMENT ) specializing in labour law.
61. I'm afraid my spouse or significant other won't be
attracted to me because of my Leucoderma. What should I do?
Relationship issues are without question one of the most
important social problems that come up with Leucoderma. People with Leucoderma
are frequently concerned that they will no longer be attractive to their
significant others, partners or spouses. What we find to be the case most
often, is that the partners of people with Leucoderma are not terribly concerned
about the Leucoderma, and often say that it does not bother them. So learn to
communicate with your partner or spouse, express your concerns and fears.
Another possibility is to make yourself attractive in other ways.
62. I feel self-conscious and uncomfortable at places like
the beach ,marriage halls, swimming pools and other social gatherings What can
I do?
Don't avoid the beach, social gatherings or swimming pools
just because of your Leucoderma. Do not allow Leucoderma to interfere with the
joy of living. From a physical aspect, it may make sense to go swimming and to
the beach in the later afternoons, when the sun is not as strong. If it makes
you feel better, wear stain or waterproof makeup cover. And if people ask about
the Leucoderma, you should explain it to them just as indicated above.
63. How do I find a good counselor or psychotherapist to
help me with the emotional issues?
When ever you feel distressed feel free to call LEUCODERMA
AWARENESS MOVEMENT. Second to that, you should try to take medicine to
disappear the conditions which affect your appearance. People at LEUCODERMA
AWARENESS MOVEMENT help you to deal with Leucoderma, both inwardly and
socially, and can work with you to maintain your self-esteem and pride.
POSTED BY LEUCODERMA AWARENESS1. What is Leucoderma / vitiligo?
Leucoderma is a relatively common skin disorder, in which
white spots or patches appear on the skin. These spots are caused by
destruction or weakening of the pigment cells in those areas, resulting in the
pigment being destroyed or no longer produced. Many doctors and researchers
believe that Leucoderma is an autoimmune-related disorder.. In Leucoderma, only
the colour of the skin is affected. The texture and other skin qualities remain
normal.
2. What does Leucoderma look like?
Leucoderma appears as uneven white patches on the skin, that
may vary from lighter tan to complete absence of pigment. Many people develop
Vitiligo bilaterally, in other words, if it appears on one elbow, it often
appears on the other elbow. Researchers do not completely understand why this
is. Others develop what is known as segmental vitiligo, where the patches
develop in only one area or on only one side of the body.
3. What is an autoimmune disorder?
An autoimmune disorder is any of a number of conditions in
which a person's immune system reacts against the body's own organs or tissues,
and the person's immune system produces antibodies to them. An autoimmune
disorder is NOT an "immune deficiency". In the case of Leucoderma, we
believe that the immune system probably sees the person's own pigment cells as
foreign bodies, and attacks them, destroying them or weakening them. Other
examples of autoimmune disorders include thyroid disorders and pernicious
anemia.
4. What is a Melanocyte (Pigment Cell)?
A Melanocyte is a specialized cell located in the skin,
which produces melanin (pigment). Surprisingly, all humans have roughly the
same number of pigment cells in their skin. Those with darker toned skin, have
pigment cells that are able to store more melanin within them. In the diagram
below, the cell with the tendrils, marked "I" is the melanocyte. The
brown color within the cell is the melanin. The cell uses the tendrils to
distribute the melanin evenly throughout the skin.
5.What is Melanin?
Melanin is a dark brown pigment of skin and hair in animals,
particularly vertebrates, derived from the amino acid tyrosine. It is
synthesized by special cells called Melanocytes, which also store the melanin.
6.What are the symptoms of Leucoderma?
People who develop Leucoderma usually first notice white
patches or spots depigmentation) on their skin. The skin remains of normal
texture, though very few people experience itching in areas where
depigmentation is occurring. The white patches are more obvious in sun-exposed
areas, including the hands, feet, arms, legs face, and lips. Other common areas
for white patches to appear are the armpits and groin and around the mouth,
eyes, nostrils, navel, and genitals. Leucoderma generally appears in one of
three patterns. In one pattern (focal pattern), the depigmentation is limited
to one or only a few areas. Some people develop depigmented patches on only one
side of their bodies (segmental vitiligo). For most people who have Leucoderma
depigmentation occurs on different parts of the body, in a bilateral pattern
(generalized vitiligo). In addition to white patches on the skin, few people
with Leucoderma may experience white hair growing in on the scalp, eyelashes,
eyebrows, and beard.
7. I have Leucoderma patches on my underarms, my feet and my
genitals. Is this common?
For reasons we don't really understand yet, there are
certain parts of the body, which are commonly affected in those who have
Leucoderma. The face, underarms, hands, wrists, fingers, feet, elbows, knees
and genitals are among these areas. There are many theories about why such
sensitive areas of the body seem to be commonly affected - the presence of many
nerve endings, the bony nature, sweat glands, etc.
8. How does Leucoderma develop?
The course and severity of pigment loss differ with each
person. In many cases, Leucoderma begins in a small area. Over time, other
spots may appear, while existing spots may grow larger. Some people notice that
their Leucoderma may stay the same for years or even decades, and then suddenly
new areas of depigmentation may occur. Occasionally, Leucoderma patches will
repigment spontaneously, all by themselves, with no treatment whatsoever. Many
people with Leucoderma do notice this happening at some point in their lives.
9. Is depigmentation ever accompanied by itching?
Few,though not all affected, do experience itching of the
skin prior to or while depigmentation is occurring. No research or studies have
suggested a reason for this.
10. Will the Leucoderma patches spread over time?
Will they get larger? In many, but certainly not all cases
,Leucoderma does progress slowly over time, but there is really no way to tell
whether your Leucoderma will progress or not. It is a slow progressing
condition however, and many affected report that they may go many years without
new patches developing, and then may discover new patches appearing years
later. Some people even report spots that spontaneously repigment, with no
treatment at all. Proper herbal medicines however, able to arrest new spots and
even repigment old one.
11. Is Leucoderma at all contagious?
Leucoderma is NOT contagious. If it were, many more people
in the world, including doctors who treat Leucoderma and family members of
those with Leucoderma, would have the condition. There are many theories about
what causes Leucoderma.
12. Where does the word "Vitiligo" come from?
It is believed that the word "vitiligo" comes from
Latin. The first part of the word, "viti" is from the Latin word
"vitium" meaning a mark or blemish. The suffix, "ligo" is a
common Latin ending meaning to bind or cause.
13. How do you pronounce the word "vitiligo"?
Many people pronounce this word incorrectly the first time
they see it. But to hear it correctly, say the words "Little I Go."
Then replace the first "L" with a "V" - giving you
"Vittle I Go." Run the words together and you have the correct
pronunciation.
14. What causes vitiligo?
Many believe that vitiligo is a type of autoimmune disorder,
in which the body's immune system sees the pigment cells in the skin as foreign
bodies, and attacks them. Other theories include the possibility that an
abnormally functioning nervous system may produce a substance that injures
melanocytes. Some believe that melanocytes in Leucoderma affected may
self-destruct, releasing toxic by products that then destroy other pigment
cells. We know that some cases of vitiligo arise from exposure to certain
chemicals, for example, phenols used in photography. Surgery wounds or injuries
to the skin have also been known to result in Leucoderma, which can spread.
Finally, there are alternative theories about Leucoderma that suggest diet,
nutrition, and digestive disorders may play a role in the destruction of
melanocytes. Some believe that internal pathogens within the digestive tract,
such as yeast proliferation, might relate to vitiligo.
15. What is oxidative stress?
This is one theory about what may cause or contribute to the
onset or exacerbation of vitiligo. Oxidative stress is an over-accumulation of
hydrogen peroxide in the skin. Every person develops hydrogen peroxide in the
skin, as a result of natural biological processes. An enzyme called
"catalase" normally breaks down the hydrogen peroxide in the skin
into water and oxygen. However, some people with vitiligo may have a problem
manufacturing, using or delivering catalase to the skin.
16. Is it true that genetics may play a part in Leucoderma?
Most experts believe that there is a genetic base to
Leucoderma which leads to susceptibility. In about only 12% of families where a
person has Leucoderma, the condition is seen in another family member. Any one
else may show signs of Leucoderma . 88% of Leucoderma affected have no family
history of Leucoderma
17. What is genetic susceptibility?
This is the theory that the susceptibility or predisposition
to vitiligo is genetic, and that some defect in the genetic structure, makes
people more susceptible to vitiligo. While we do see vitiligo in more than one
family member about 20% of the time, about 80% of patients report no other
family members with vitiligo. Many experts agree that not everyone who is
susceptible to vitiligo will necessarily develop it .
18. Is it true that exposure to certain chemicals can cause
Leucoderma?
Some chemicals, particularly photography chemicals such as
Phenols, can triggerLeucoderma in those who are susceptible. Phenols can also
be found in many types of hair colorings, household stains, and similar
products. There are other industrial chemicals and substances which may also
trigger the onset of Leucoderma.
19. Are there things that a person with vitiligo should
avoid?
In addition to the phenol type chemicals listed in the
previous paragraph, there are other things and activities which people with
vitiligo should avoid. Unfortunately, the list of activities, products and
chemicals to avoid varies, depending on who you talk to.
20. Are there any other symptoms?
Will Leucoderma lead to other conditions or diseases?Other
than the white patches of skin, there are no other physical symptoms of
Leucoderma. As a secondary effect, Leucoderma patches will tend to sunburn more
easily, and sunscreen is often recommended. Though some suggest eye color and
vision may be affected by Leucoderma experts indicate that any effect on eye
color or the retinal pigment is extremely rare, and any impairment of vision,
even rarer.
21.Are there other conditions related to Leucoderma?
Leucoderma itself does not appear to "lead" to
other conditions.
Some beleiveThyroid disorders (especially hypothyroidism)
are quite common in those with vitiligo, and Some doctors feel treating thyroid
disorders is important in treating vitiligo. Other related autoimmune
conditions are much rarer.Nevertheless, most people with vitiligo have no other
autoimmune disorders.
22. How is thyroid function related to Leucoderma?
Thyroid disorders are extremely common in every ethnic and
racial group on the planet. The thyroid is a small, butterfly-shaped gland just
below the Adam's apple. This gland plays an important role in controlling the
body's metabolism, that is, how the body functions. It does this by producing
thyroid hormones ,that travel through the blood to every part of the body.
Thyroid hormones tell the body how fast to work and use energy. Because
vitiligo may well be related to numerous functions within the body, a properly
functioning thyroid (or sufficient supplemental hormone) could be important in
treating Leucoderma.
23. Are there treatments I should not use if I am pregnant?
There are definitely some medications which will pass
through the placenta to your fetus. Ultraviolet light may also pose some risk.
If you are pregnant, you should definitely consult with both your
dermatologist, practitioners of Indian medicines regarding any risks to the
various types of treatments available for Leucoderma
24. If I am pregnant and have Leucoderma, will my child
developLeucoderma?
Most people with Leucoderma have no relatives with
Leucoderma. However,12 percentage of people with Leucoderma do have parents, or
siblings or children who develop Leucoderma that a genetic factor does appear
to exist.
25. Am I at greater risk for skin cancer because of my
Leucoderma?
While there is some disagreement in the medical community,
many Leucoderma experts believe there is not an increased risk for skin cancer
in Leucoderma affected. According to Pearl Grimes, MD, a leading medical expert
on Leucoderma, "the current data show no increase in skin cancer in
Leucoderma affected, both within the Leucoderma patches, or the normal
skin...either way."
26. is PUVA or UVB associated with an increase in skin
cancer in areas of Leucoderma?
Doctors say no. In psoriasis literature and articles, we do
see an increase in skin cancer for those treating with UV light. But this is
NOT the case for Leucoderma affected. In the case of Narrow Band UVB itself,
many suggest that UVB is less carcinogenic. More research and data are
required, since UVB and narrow band UVB are so new. But many doctors and
researchers feel that Narrow Band UVB is safer than other light options.
27. Who is affected by Leucoderma?
About 1 to 2 percent of the world's population, or from 50
to 100 million people, have Leucoderma. In India nearly 5 crore people have
this disorder. It is suspected that some countries may have higher incidents of
Leucoderma, for various genetic and societal reasons. Ninety-five percent of
people who have Leucoderma develop it before their 40th birthday, most between
the ages of 10 and 30. The disorder affects all races, ethnicities and both
sexes equally, which suggests that it truly is a human problem. Even on remote
islands where the population is completely homogenous, we see instances of
Leucoderma.
28. How long has Leucoderma existed?
We believe that Leucoderma has existed at least as long as
the recorded history of man, and probably before that, since similar conditions
are seen in many other animals. References to Leucoderma patches are mentioned
in the bible, and in ancient Chinese and Greek writings.
29. How is Leucoderma diagnosed?
If a doctor suspects that a person has Leucoderma, he or she
usually begins by asking the person about his or her medical history. Important
factors in a person's medical history are a family history of Leucoderma; a
rash, sunburn, or other skin trauma at the site of Leucoderma. In addition, the
doctor will need to know whether the affected or anyone in the victim's family
has had any autoimmune disorders and whether the affected is very sensitive to
the sun. The doctor will then examine the patient to rule out other medical
problems. The doctor may take a small sample (biopsy) of the affected skin. He
or she may also take a blood sample to check the blood-cell count and thyroid
function. The doctor may examine your skin with a special black light called a
Woods Light, which illuminates areas of Leucoderma. This also helps the doctor
rule out other conditions. For some affected, the doctor may recommend an eye
examination to check for uveitis (inflammation of part of the eye). A blood
test to look for the presence of antinuclear antibodies (a type of
autoantibody) may also be done. This test helps determine if the affected has
any other autoimmune conditions.
30. I was told Leucoderma could not be treated. Is that
correct?
Leucoderma is difficult to treat - that much is true. But in
the past few years, new treatments have been developed that are working good.
And there are more options .Leucoderma can be treated through herbals But
treatment can take time from 2years to 3 years or longer to see results.
31. I was told that Leucoderma was just cosmetic. Is that
right?
It's true that Leucoderma is not fatal, and that it has no
other physical symptoms other than white patches, the emotional and social
effects of Leucoderma on people are well-documented.
32. Are there any new treatments being worked on?
More research and development than ever before is being
conducted about Leucoderma and treating it through Indian system of medicines
33. What is a topical steroid cream or ointment?
Steroid creams come in different strengths.
Although still not completely understood, steroids may be
helpful in re pigmenting the skin, particularly if started early in the
condition and where only a few patches or spots need to be treated.. Doctors
often prescribe a mild topical steroid cream for children under 10 years old
and a stronger one for adults. affected must apply the cream to the white
patches on their skin for at least 3 months before seeing any results. It is
the simplest and safest treatment but not as effective as other herbal
treatments,good advice is go for herbal treatment that is absolutely risk
free.Steroids treatment must be carefully monitored, as steroids can thin and
damage the skin if not carefully watched. The doctor will closely monitor the
patient for side effects such as skin shrinkage and skin striae (stretch
marks). Because of the side effects, steroid creams should not be used for
extended periods of time.
34. What is a steroid?
Steroid is the Greek word for hormone. Some steroids occur
naturally in the body, such as cortisol, sex hormones, bile acids. Cortisol is
essential for all life. There are many kinds of steroids, Cortico, Glutico, Sex
Hormones and Anabolic steroids. Anabolic steroids are illegal. When synthetic
steroid hormones are prescribed and used correctly, they can be helpful, and
their side-effects can be reduced. But when safeguards are ignored, damage can
result.
35.What is topical psoralen therapy?
Topical psoralen photochemotherapy often is used for people with
a small number of depigmented patches (affecting less than 20 percent of the
body). It is also used for children 2 years old and older who have localized
patches of Leucoderma. Treatments are done in a doctor's office under
artificial UVA light once or twice a week. The doctor or nurse applies a thin
coat of psoralen to the victim's depigmented patches about 30 minutes before
UVA light exposure. The affected is then exposed to an amount of UVA light that
turns the affected area pink. The doctor usually increases the dose of UVA
light slowly over many weeks. Eventually, the pink areas fade and a more normal
skin color appears. Most victimss wash off any topical residue after treatment.
The two major potential side effects of topical psoralen therapy are severe
sunburn and blistering and occasionally too much repigmentation or darkening of
the treated area or the normal skin surrounding the leucoderma
(hyperpigmentation).
36. What is skin grafting?
In an autologous (use of a person’s own tissues) skin graft,
the doctor removes skin from one area of a victim's body and attaches it to
another area. This type of skin grafting is sometimes used for affected with
small patches of Leucoderma. The doctor removes sections of the normal,
pigmented skin (donor sites) and places them on the depigmented areas
(recipient sites). There are several possible complications of autologous skin
grafting. Infections may occur at the donor or recipient sites. The recipient
and donor sites may develop scarring or an uneven appearance, or may fail to
repigment at all. Treatment with grafting takes time and is costly.
37. What is autologous melanocyte transplant?
In this procedure, the doctor takes a sample of the victim's
normally pigmented skin and places it in a laboratory dish containing a special
cell culture solution to grow melanocytes. When the melanocytes in the culture
solution have multiplied, the doctor transplants them to the patient's
depigmented skin patches. A fairly new technology, this procedure is still in the
experimental stages.
38. What is Melagenina?
Melagenina (now Melagenina Plus) was developed in Cuba about
20 years ago, using human placenta tissue. They may now use other animal
placental tissues. The company in Cuba that markets it claims high success
rates, but these cannot be substantiated, and many people have claimed no
results at all. The product instructions indicate that application of the cream
should be several times a day, followed by 15 minutes of natural sunlight. In
1998, Melagenina Plus was announced, which unlike the previous treatment
requires only once daily application and does not require exposure to the sun.
39. What is depigmentation?
Depigmentation involves fading the rest of the skin on the
body to match the already white areas. For people who have Leucoderma on more
than 50 percent of their body, depigmentation may be the best treatment option.
Victims must avoid direct skin-to-skin contact with other people for at least 2
hours after applying the drug. The major side effect of depigmentation therapy
is inflammation (redness and swelling) of the skin. Affected may experience
itching or dry skin. Depigmentation is generally permanent and cannot be
reversed. In addition, a person who undergoes depigmentation will always be
unusually sensitive to sunlight.
40. How do I find a doctor that treats Leucoderma?
The best way to find a solution for Leucoderma consult
LEUCODERMA AWARENESS MOVEMENT at 044 2226 5507 or 044 6538 1157,there you can
avail good counseling medication by professionals to disappear Leucoderma.
41. Are there parts of the body that are harder to treat
than others?
For some reason, certain parts of the body, including the
hands, feet, and some areas where the hair has turned white, do seem to be
harder to treat than other areas. However, many of today's brightest experts in
the treatment of Leucoderma, maintain that ANY Leucoderma spot can be
repigmented, and even hair repigmented, with enough work and dedication. Those
who have Leucoderma should contact LEUCODERMA AWARENESS MOVEMENT and avail
result oriented HERBAL treatment.
42. Can tanning beds (solariums) be used in place of PUVA or
Narrow Band UVB?
Many experts suggest that tanning beds (also known as
tanning booths and solariums) not be used in place of PUVA lamps or Narrow Band
UVB lamps or even natural sunlight. The problem with tanning beds is that the
lamps in these devices usually emit a much stronger, broader spectrum of UV
rays, and may not be as safe or effective for people treating Leucoderma, and
may result in severe burning or other side effects.
43. Can the genitals be treated?
Obviously a sensitive subject, but many people with
Leucoderma have the same question.. The reality is, a substancial number of
people with Leucoderma (estimated at 30 to 40 percent) do experience at least
some (if not extensive) Leucoderma on their genitals. For many people, this can
have an effect on their own esteem, and in their social and sexual lives.The
genitalia can be treated and are in many cases responsive to treatment.
Traditional therapies, such as Herbal medicines and food restriction, have been
used to treat the genitals, both male and female.
44. Is it safe to use all treatments on the face and around
the eyes?
Medicines suggested in traditional therapies have no harm.As
with all ointments and creams, you want to discuss this with your doctor. The
greatest risk to the eyes from Leucoderma treatment is UV exposure. Prior to
any treatment with UV light, it is wise to have a full Ophthalmic exam.
45. Once a spot repigments, is it permanent? Will I have to
treat my Leucoderma forever?
Right now,(in allopathy) the products available for treating
Leucoderma, seem to be addressing the symptom of Leucoderma (the spots), and
not the underlying cause, which we still don't completely understand. Once a
spot has been repigmented, some people report that the new pigment lasts a long
time, and many do not report any relapse of that spot. Some affected feel that
if you can get a spot to "close," meaning, to be repigmented
completely to the naked eye, that it will have a better chance of staying
repigmented. Still, a significant number of people report that after
repigmenting, and then stopping treatment, that over time, from a few months to
a decade or longer, the areas start to lose pigment again.
At the same time, the alternative practitioners understood
well the underlying cause of Leucoderma. Therefore, you can begin herbal based
treatment by Indian Medicine practitioners as soon as possible..( you can avail
treatment from LEUCODERMA CLINIC run by LEUCODERMA AWARENESS MOVEMENT.) This is
also something important to consider. we treat the CAUSE of our Leucoderma,
rather than just the symptoms.
46. Why bother treating at all if permanence of
repigmentation is not guaranteed?
This is a common thought for those with Leucoderma. Why
should we attempt to treat at all, and spend the money, if the permanence of
our new pigment is not guaranteed? There are several reasons. First, for many
people, simply making some attempt to repigment, in of itself, is a powerful
emotional tool in dealing with their Leucoderma. Second, it is clear that the
larger area of vitiligo, or the more extensive vitiligo is on a person, the
harder it may be, and the longer it may take to repigment.
47. What if my health insurance won't cover my Leucoderma
treatments?
Many health insurance companies will initially reject
treatments for Leucoderma or will approve only some, because they claim the
condition is only cosmetic. Of course we know that's not fully true. The key
with insurance companies, is to be persistent until you achieve success. Until
health insurance companies universally begin accepting Leucoderma as a
legitimate medical condition that affects psychological and physical
well-being, in addition to susceptibility to sunburn, this is how it must be
done.The first step, is to have your doctor write a letter to the insurance
company, explaining Leucoderma, explaining the psycho-social effect, and the
physical risks of Leucoderma, such as serious sunburn. This is often
sufficient, but it will be more convincing if you follow up with a letter of
your own to the health insurance approval dept. Sometimes it will take more
letters, phone calls, and supporting evidence, but if you are persistent, most insurance
companies, will eventually give in, rather than have to receive any more
letters and calls from you.
48. What research is being done on Leucoderma?
There is probably more research being conducted today in the
area of Leucoderma, than ever before. From the genetic basis of autoimmune
disorders, to the structure of the skin, and understanding the immune system,
studies are now being conducted which may yield more information about the
nature and causes of Leucoderma, and how to treat it more effectively.
49. How can I help?
LEUCODERMA AWARENESS MOVEMENT committed to supporting those
affected by Leucoderma raising awareness, promoting research, and discussing
effective treatments until a solution is found.. You can help support our
efforts in various level. Please call LEUCODERMA AWARENESS MOVEMENT.
50. Will they ever find a treatment or a cure that works
well for everyone?
Because people are different, and because there are thought
to be many different causes of Leucoderma, different treatments work better for
different people.
51. Are there cosmetics available to cover Leucoderma spots?
Yes, there are many products out there to provide excellent
camouflage of Leucoderma spots. Some people prefer traditional waterproof
makeup, designed to match every skin tone, and which can be applied to the
spots only. Though they are waterproof, they are not always friction proof, and
some men will not wear them. These types of covers are available in every skin
tone, from very fair to dark black.
52. Is it true that I can make my own safe skin-colored
stain to cover the spots?
Yes! Some affected of Leucoderma have created their own safe
homemade skin stain, made entirely out of herbals and ordinary Food Coloring.
By mixing the ingredients together, a brownish color results, and the tone can
easily be adjusted to match your skin.
53. Is it safe for someone with Leucoderma to use hair dyes
or bleaches?
No, it is not safe. Experts recommend that if you have
Leucoderma, you should avoid hair colorings and bleaches. Chemicals in these
products called Phenols may cause the onset or further spreading of Leucoderma.
Temporary hair colourings however, such as henna, which do not contain phenols
or phenol derivatives, are generally accepted as safe. When in doubt, you
should consult with your physician.
54. Should I use sunscreen?
It is always a good idea for people with Leucoderma to use
sunscreen,(Better use Umbrella) whenever they will be spending more than a few
minutes in the sun. Besides the need to protect the skin from severe sunburn,
sunscreen will keep non-Leucoderma affected areas from tanning, thus helping
you to avoid the contrast that results between tanned areas, and Leucoderma
spots.
55. What about sun-protective clothing?
Sun protective clothing can be a good addition or
alternative to using sunscreens. Since sun protective clothing is an easy way
to protect your skin from the sun without using chemicals such as those found
in sunscreens, it is becoming more popular. This clothing is rated by a UPF (ultraviolet
protection factor) rather than a SPF (sun protection factor), as it protects
from both UVA and UVB rays. A garment with a UPF of 50 would block 98% of all
UVA and UVB rays. Sun protective clothing can be found for men, women, and
children, along with hats and sun protective swimwear.
56. How do I deal with the emotional issues of Leucoderma?
The change in appearance caused by Leucoderma can affect a
person's emotional and psychological well-being and may create difficulty in
professional and social situations. People with Leucoderma can experience
emotional stress, particularly if Leucoderma develops on visible areas of the
body, such as the face, hands, arms, feet, or on the genitals. Adolescents, who
are often particularly concerned about their appearance, can be devastated by
widespread Leucoderma. Some people who have Leucoderma feel embarrassed,
ashamed, depressed, or worried about how others will react.Several strategies
can help a person cope with Leucoderma. First, it is important to find a doctor
who is knowledgeable about Leucoderma and takes the disorder seriously. The
doctor should also be a good listener and be able to provide emotional support.
Affected should also learn as much as possible about the disorder and treatment
choices so that they can participate in making important decisions about
medical care. LEUCODERMA AWARENESS MOVEMENT provides counseling and treatment
through dedicated professional of this field.Talking with other people who have
leucoderma can help a person cope with the disorder. LEUCODERMA AWARENESS
MOVEMENT provides AWARENESS DOCUMENTARY, PAMPLETS,BOOKLETS for this very
purpose, and most members here have found them an invaluable source of support.
Relatives, family and friends are another important source of support.Finally,
counseling with a registered practitioners can help you examine your fears,
improve your self esteem, and find ways to deal with the emotional and social
issues that everyone with Leucoderma faces.
57. People stare at my spots. I am embarrassed by my
Leucoderma. Is there anything I can do?
First, understand that to most people, Leucoderma is
unusual, and perhaps a bit unsettling. Do not be afraid to tell people what it
is, especially children. Kids are pretty smart these days, and everyone can
understand if you explain that Leucoderma is a condition in which the immune
system sees the pigment cells as foreign bodies, and attacks them (our best
explanation). Explain that it does not hurt, and that it is a genetic
condition, and is not contagious.Finally, try to maintain a normal lifestyle.
If you enjoy sports, or swimming, then you should continue to engage in these
activities (remembering sunscreen where appropriate). Don't avoid social
situations and parties - these are good for your psychological well-being. In
the old days, many people thought Leucoderma was the result of burns or
chemical spills. But people are becoming more aware about Leucoderma and it
seems that almost everyone knows someone with the condition.
58. How do I explain Leucoderma to people? Should I even
bother?
We suggest that you be honest and open, and explain to
people that Leucoderma is a genetic condition, in which the body's immune
system sees pigment cells as foreign bodies, and attacks them. Explain that it
is a rather common condition, that it does not hurt or itch, and that it is not
contagious. Finally, explain to them that treatment for the condition is
improving. When they realize that this is a condition just like every other
miserable condition humans inherit, they are less likely to be afraid of it.
59. I have a child with Leucoderma. What should I do?
Children usually cope best with Leucoderma when their
parent(s) is/are prepared to talk about the condition as openly and truthfully
as possible. To pretend you haven't noticed something so obvious may make it
difficult for your child to talk to you about it. Because this is often so
difficult for parents to cope with, especially as relates to other children, it
is important to talk with teachers, and to be conscious if your child is being
teased or bullied. Support your child, and encourage them to get involve with
activities and hobbies. Teach them that it is OK to be different, and that it
doesn't make them any less important. An useful documentary on Leucoderma
awareness available at LEUCODERMA AWARENESS MOVEMENT completely free of cost ,
get it and ask your children to watch.
60. I am afraid I might lose my job because of my
Leucoderma. What should I do?
Under our land of law, all citizens are protected from
discrimination in their work or from being fired based on medical conditions or
illness. If you feel that you have been discriminated against because of your
Leucoderma, then you should consult an advocate (or contact LEUCODERMA
AWARENESS MOVEMENT ) specializing in labour law.
61. I'm afraid my spouse or significant other won't be
attracted to me because of my Leucoderma. What should I do?
Relationship issues are without question one of the most
important social problems that come up with Leucoderma. People with Leucoderma
are frequently concerned that they will no longer be attractive to their
significant others, partners or spouses. What we find to be the case most
often, is that the partners of people with Leucoderma are not terribly concerned
about the Leucoderma, and often say that it does not bother them. So learn to
communicate with your partner or spouse, express your concerns and fears.
Another possibility is to make yourself attractive in other ways.
62. I feel self-conscious and uncomfortable at places like
the beach ,marriage halls, swimming pools and other social gatherings What can
I do?
Don't avoid the beach, social gatherings or swimming pools
just because of your Leucoderma. Do not allow Leucoderma to interfere with the
joy of living. From a physical aspect, it may make sense to go swimming and to
the beach in the later afternoons, when the sun is not as strong. If it makes
you feel better, wear stain or waterproof makeup cover. And if people ask about
the Leucoderma, you should explain it to them just as indicated above.
63. How do I find a good counselor or psychotherapist to
help me with the emotional issues?
When ever you feel distressed feel free to call LEUCODERMA
AWARENESS MOVEMENT. Second to that, you should try to take medicine to
disappear the conditions which affect your appearance. People at LEUCODERMA
AWARENESS MOVEMENT help you to deal with Leucoderma, both inwardly and
socially, and can work with you to maintain your self-esteem and pride.
POSTED BY LEUCODERMA AWARENESS1. What is Leucoderma / vitiligo?
Leucoderma is a relatively common skin disorder, in which
white spots or patches appear on the skin. These spots are caused by
destruction or weakening of the pigment cells in those areas, resulting in the
pigment being destroyed or no longer produced. Many doctors and researchers
believe that Leucoderma is an autoimmune-related disorder.. In Leucoderma, only
the colour of the skin is affected. The texture and other skin qualities remain
normal.
2. What does Leucoderma look like?
Leucoderma appears as uneven white patches on the skin, that
may vary from lighter tan to complete absence of pigment. Many people develop
Vitiligo bilaterally, in other words, if it appears on one elbow, it often
appears on the other elbow. Researchers do not completely understand why this
is. Others develop what is known as segmental vitiligo, where the patches
develop in only one area or on only one side of the body.
3. What is an autoimmune disorder?
An autoimmune disorder is any of a number of conditions in
which a person's immune system reacts against the body's own organs or tissues,
and the person's immune system produces antibodies to them. An autoimmune
disorder is NOT an "immune deficiency". In the case of Leucoderma, we
believe that the immune system probably sees the person's own pigment cells as
foreign bodies, and attacks them, destroying them or weakening them. Other
examples of autoimmune disorders include thyroid disorders and pernicious
anemia.
4. What is a Melanocyte (Pigment Cell)?
A Melanocyte is a specialized cell located in the skin,
which produces melanin (pigment). Surprisingly, all humans have roughly the
same number of pigment cells in their skin. Those with darker toned skin, have
pigment cells that are able to store more melanin within them. In the diagram
below, the cell with the tendrils, marked "I" is the melanocyte. The
brown color within the cell is the melanin. The cell uses the tendrils to
distribute the melanin evenly throughout the skin.
5.What is Melanin?
Melanin is a dark brown pigment of skin and hair in animals,
particularly vertebrates, derived from the amino acid tyrosine. It is
synthesized by special cells called Melanocytes, which also store the melanin.
6.What are the symptoms of Leucoderma?
People who develop Leucoderma usually first notice white
patches or spots depigmentation) on their skin. The skin remains of normal
texture, though very few people experience itching in areas where
depigmentation is occurring. The white patches are more obvious in sun-exposed
areas, including the hands, feet, arms, legs face, and lips. Other common areas
for white patches to appear are the armpits and groin and around the mouth,
eyes, nostrils, navel, and genitals. Leucoderma generally appears in one of
three patterns. In one pattern (focal pattern), the depigmentation is limited
to one or only a few areas. Some people develop depigmented patches on only one
side of their bodies (segmental vitiligo). For most people who have Leucoderma
depigmentation occurs on different parts of the body, in a bilateral pattern
(generalized vitiligo). In addition to white patches on the skin, few people
with Leucoderma may experience white hair growing in on the scalp, eyelashes,
eyebrows, and beard.
7. I have Leucoderma patches on my underarms, my feet and my
genitals. Is this common?
For reasons we don't really understand yet, there are
certain parts of the body, which are commonly affected in those who have
Leucoderma. The face, underarms, hands, wrists, fingers, feet, elbows, knees
and genitals are among these areas. There are many theories about why such
sensitive areas of the body seem to be commonly affected - the presence of many
nerve endings, the bony nature, sweat glands, etc.
8. How does Leucoderma develop?
The course and severity of pigment loss differ with each
person. In many cases, Leucoderma begins in a small area. Over time, other
spots may appear, while existing spots may grow larger. Some people notice that
their Leucoderma may stay the same for years or even decades, and then suddenly
new areas of depigmentation may occur. Occasionally, Leucoderma patches will
repigment spontaneously, all by themselves, with no treatment whatsoever. Many
people with Leucoderma do notice this happening at some point in their lives.
9. Is depigmentation ever accompanied by itching?
Few,though not all affected, do experience itching of the
skin prior to or while depigmentation is occurring. No research or studies have
suggested a reason for this.
10. Will the Leucoderma patches spread over time?
Will they get larger? In many, but certainly not all cases
,Leucoderma does progress slowly over time, but there is really no way to tell
whether your Leucoderma will progress or not. It is a slow progressing
condition however, and many affected report that they may go many years without
new patches developing, and then may discover new patches appearing years
later. Some people even report spots that spontaneously repigment, with no
treatment at all. Proper herbal medicines however, able to arrest new spots and
even repigment old one.
11. Is Leucoderma at all contagious?
Leucoderma is NOT contagious. If it were, many more people
in the world, including doctors who treat Leucoderma and family members of
those with Leucoderma, would have the condition. There are many theories about
what causes Leucoderma.
12. Where does the word "Vitiligo" come from?
It is believed that the word "vitiligo" comes from
Latin. The first part of the word, "viti" is from the Latin word
"vitium" meaning a mark or blemish. The suffix, "ligo" is a
common Latin ending meaning to bind or cause.
13. How do you pronounce the word "vitiligo"?
Many people pronounce this word incorrectly the first time
they see it. But to hear it correctly, say the words "Little I Go."
Then replace the first "L" with a "V" - giving you
"Vittle I Go." Run the words together and you have the correct
pronunciation.
14. What causes vitiligo?
Many believe that vitiligo is a type of autoimmune disorder,
in which the body's immune system sees the pigment cells in the skin as foreign
bodies, and attacks them. Other theories include the possibility that an
abnormally functioning nervous system may produce a substance that injures
melanocytes. Some believe that melanocytes in Leucoderma affected may
self-destruct, releasing toxic by products that then destroy other pigment
cells. We know that some cases of vitiligo arise from exposure to certain
chemicals, for example, phenols used in photography. Surgery wounds or injuries
to the skin have also been known to result in Leucoderma, which can spread.
Finally, there are alternative theories about Leucoderma that suggest diet,
nutrition, and digestive disorders may play a role in the destruction of
melanocytes. Some believe that internal pathogens within the digestive tract,
such as yeast proliferation, might relate to vitiligo.
15. What is oxidative stress?
This is one theory about what may cause or contribute to the
onset or exacerbation of vitiligo. Oxidative stress is an over-accumulation of
hydrogen peroxide in the skin. Every person develops hydrogen peroxide in the
skin, as a result of natural biological processes. An enzyme called
"catalase" normally breaks down the hydrogen peroxide in the skin
into water and oxygen. However, some people with vitiligo may have a problem
manufacturing, using or delivering catalase to the skin.
16. Is it true that genetics may play a part in Leucoderma?
Most experts believe that there is a genetic base to
Leucoderma which leads to susceptibility. In about only 12% of families where a
person has Leucoderma, the condition is seen in another family member. Any one
else may show signs of Leucoderma . 88% of Leucoderma affected have no family
history of Leucoderma
17. What is genetic susceptibility?
This is the theory that the susceptibility or predisposition
to vitiligo is genetic, and that some defect in the genetic structure, makes
people more susceptible to vitiligo. While we do see vitiligo in more than one
family member about 20% of the time, about 80% of patients report no other
family members with vitiligo. Many experts agree that not everyone who is
susceptible to vitiligo will necessarily develop it .
18. Is it true that exposure to certain chemicals can cause
Leucoderma?
Some chemicals, particularly photography chemicals such as
Phenols, can triggerLeucoderma in those who are susceptible. Phenols can also
be found in many types of hair colorings, household stains, and similar
products. There are other industrial chemicals and substances which may also
trigger the onset of Leucoderma.
19. Are there things that a person with vitiligo should
avoid?
In addition to the phenol type chemicals listed in the
previous paragraph, there are other things and activities which people with
vitiligo should avoid. Unfortunately, the list of activities, products and
chemicals to avoid varies, depending on who you talk to.
20. Are there any other symptoms?
Will Leucoderma lead to other conditions or diseases?Other
than the white patches of skin, there are no other physical symptoms of
Leucoderma. As a secondary effect, Leucoderma patches will tend to sunburn more
easily, and sunscreen is often recommended. Though some suggest eye color and
vision may be affected by Leucoderma experts indicate that any effect on eye
color or the retinal pigment is extremely rare, and any impairment of vision,
even rarer.
21.Are there other conditions related to Leucoderma?
Leucoderma itself does not appear to "lead" to
other conditions.
Some beleiveThyroid disorders (especially hypothyroidism)
are quite common in those with vitiligo, and Some doctors feel treating thyroid
disorders is important in treating vitiligo. Other related autoimmune
conditions are much rarer.Nevertheless, most people with vitiligo have no other
autoimmune disorders.
22. How is thyroid function related to Leucoderma?
Thyroid disorders are extremely common in every ethnic and
racial group on the planet. The thyroid is a small, butterfly-shaped gland just
below the Adam's apple. This gland plays an important role in controlling the
body's metabolism, that is, how the body functions. It does this by producing
thyroid hormones ,that travel through the blood to every part of the body.
Thyroid hormones tell the body how fast to work and use energy. Because
vitiligo may well be related to numerous functions within the body, a properly
functioning thyroid (or sufficient supplemental hormone) could be important in
treating Leucoderma.
23. Are there treatments I should not use if I am pregnant?
There are definitely some medications which will pass
through the placenta to your fetus. Ultraviolet light may also pose some risk.
If you are pregnant, you should definitely consult with both your
dermatologist, practitioners of Indian medicines regarding any risks to the
various types of treatments available for Leucoderma
24. If I am pregnant and have Leucoderma, will my child
developLeucoderma?
Most people with Leucoderma have no relatives with
Leucoderma. However,12 percentage of people with Leucoderma do have parents, or
siblings or children who develop Leucoderma that a genetic factor does appear
to exist.
25. Am I at greater risk for skin cancer because of my
Leucoderma?
While there is some disagreement in the medical community,
many Leucoderma experts believe there is not an increased risk for skin cancer
in Leucoderma affected. According to Pearl Grimes, MD, a leading medical expert
on Leucoderma, "the current data show no increase in skin cancer in
Leucoderma affected, both within the Leucoderma patches, or the normal
skin...either way."
26. is PUVA or UVB associated with an increase in skin
cancer in areas of Leucoderma?
Doctors say no. In psoriasis literature and articles, we do
see an increase in skin cancer for those treating with UV light. But this is
NOT the case for Leucoderma affected. In the case of Narrow Band UVB itself,
many suggest that UVB is less carcinogenic. More research and data are
required, since UVB and narrow band UVB are so new. But many doctors and
researchers feel that Narrow Band UVB is safer than other light options.
27. Who is affected by Leucoderma?
About 1 to 2 percent of the world's population, or from 50
to 100 million people, have Leucoderma. In India nearly 5 crore people have
this disorder. It is suspected that some countries may have higher incidents of
Leucoderma, for various genetic and societal reasons. Ninety-five percent of
people who have Leucoderma develop it before their 40th birthday, most between
the ages of 10 and 30. The disorder affects all races, ethnicities and both
sexes equally, which suggests that it truly is a human problem. Even on remote
islands where the population is completely homogenous, we see instances of
Leucoderma.
28. How long has Leucoderma existed?
We believe that Leucoderma has existed at least as long as
the recorded history of man, and probably before that, since similar conditions
are seen in many other animals. References to Leucoderma patches are mentioned
in the bible, and in ancient Chinese and Greek writings.
29. How is Leucoderma diagnosed?
If a doctor suspects that a person has Leucoderma, he or she
usually begins by asking the person about his or her medical history. Important
factors in a person's medical history are a family history of Leucoderma; a
rash, sunburn, or other skin trauma at the site of Leucoderma. In addition, the
doctor will need to know whether the affected or anyone in the victim's family
has had any autoimmune disorders and whether the affected is very sensitive to
the sun. The doctor will then examine the patient to rule out other medical
problems. The doctor may take a small sample (biopsy) of the affected skin. He
or she may also take a blood sample to check the blood-cell count and thyroid
function. The doctor may examine your skin with a special black light called a
Woods Light, which illuminates areas of Leucoderma. This also helps the doctor
rule out other conditions. For some affected, the doctor may recommend an eye
examination to check for uveitis (inflammation of part of the eye). A blood
test to look for the presence of antinuclear antibodies (a type of
autoantibody) may also be done. This test helps determine if the affected has
any other autoimmune conditions.
30. I was told Leucoderma could not be treated. Is that
correct?
Leucoderma is difficult to treat - that much is true. But in
the past few years, new treatments have been developed that are working good.
And there are more options .Leucoderma can be treated through herbals But
treatment can take time from 2years to 3 years or longer to see results.
31. I was told that Leucoderma was just cosmetic. Is that
right?
It's true that Leucoderma is not fatal, and that it has no
other physical symptoms other than white patches, the emotional and social
effects of Leucoderma on people are well-documented.
32. Are there any new treatments being worked on?
More research and development than ever before is being
conducted about Leucoderma and treating it through Indian system of medicines
33. What is a topical steroid cream or ointment?
Steroid creams come in different strengths.
Although still not completely understood, steroids may be
helpful in re pigmenting the skin, particularly if started early in the
condition and where only a few patches or spots need to be treated.. Doctors
often prescribe a mild topical steroid cream for children under 10 years old
and a stronger one for adults. affected must apply the cream to the white
patches on their skin for at least 3 months before seeing any results. It is
the simplest and safest treatment but not as effective as other herbal
treatments,good advice is go for herbal treatment that is absolutely risk
free.Steroids treatment must be carefully monitored, as steroids can thin and
damage the skin if not carefully watched. The doctor will closely monitor the
patient for side effects such as skin shrinkage and skin striae (stretch
marks). Because of the side effects, steroid creams should not be used for
extended periods of time.
34. What is a steroid?
Steroid is the Greek word for hormone. Some steroids occur
naturally in the body, such as cortisol, sex hormones, bile acids. Cortisol is
essential for all life. There are many kinds of steroids, Cortico, Glutico, Sex
Hormones and Anabolic steroids. Anabolic steroids are illegal. When synthetic
steroid hormones are prescribed and used correctly, they can be helpful, and
their side-effects can be reduced. But when safeguards are ignored, damage can
result.
35.What is topical psoralen therapy?
Topical psoralen photochemotherapy often is used for people with
a small number of depigmented patches (affecting less than 20 percent of the
body). It is also used for children 2 years old and older who have localized
patches of Leucoderma. Treatments are done in a doctor's office under
artificial UVA light once or twice a week. The doctor or nurse applies a thin
coat of psoralen to the victim's depigmented patches about 30 minutes before
UVA light exposure. The affected is then exposed to an amount of UVA light that
turns the affected area pink. The doctor usually increases the dose of UVA
light slowly over many weeks. Eventually, the pink areas fade and a more normal
skin color appears. Most victimss wash off any topical residue after treatment.
The two major potential side effects of topical psoralen therapy are severe
sunburn and blistering and occasionally too much repigmentation or darkening of
the treated area or the normal skin surrounding the leucoderma
(hyperpigmentation).
36. What is skin grafting?
In an autologous (use of a person’s own tissues) skin graft,
the doctor removes skin from one area of a victim's body and attaches it to
another area. This type of skin grafting is sometimes used for affected with
small patches of Leucoderma. The doctor removes sections of the normal,
pigmented skin (donor sites) and places them on the depigmented areas
(recipient sites). There are several possible complications of autologous skin
grafting. Infections may occur at the donor or recipient sites. The recipient
and donor sites may develop scarring or an uneven appearance, or may fail to
repigment at all. Treatment with grafting takes time and is costly.
37. What is autologous melanocyte transplant?
In this procedure, the doctor takes a sample of the victim's
normally pigmented skin and places it in a laboratory dish containing a special
cell culture solution to grow melanocytes. When the melanocytes in the culture
solution have multiplied, the doctor transplants them to the patient's
depigmented skin patches. A fairly new technology, this procedure is still in the
experimental stages.
38. What is Melagenina?
Melagenina (now Melagenina Plus) was developed in Cuba about
20 years ago, using human placenta tissue. They may now use other animal
placental tissues. The company in Cuba that markets it claims high success
rates, but these cannot be substantiated, and many people have claimed no
results at all. The product instructions indicate that application of the cream
should be several times a day, followed by 15 minutes of natural sunlight. In
1998, Melagenina Plus was announced, which unlike the previous treatment
requires only once daily application and does not require exposure to the sun.
39. What is depigmentation?
Depigmentation involves fading the rest of the skin on the
body to match the already white areas. For people who have Leucoderma on more
than 50 percent of their body, depigmentation may be the best treatment option.
Victims must avoid direct skin-to-skin contact with other people for at least 2
hours after applying the drug. The major side effect of depigmentation therapy
is inflammation (redness and swelling) of the skin. Affected may experience
itching or dry skin. Depigmentation is generally permanent and cannot be
reversed. In addition, a person who undergoes depigmentation will always be
unusually sensitive to sunlight.
40. How do I find a doctor that treats Leucoderma?
The best way to find a solution for Leucoderma consult
LEUCODERMA AWARENESS MOVEMENT at 044 2226 5507 or 044 6538 1157,there you can
avail good counseling medication by professionals to disappear Leucoderma.
41. Are there parts of the body that are harder to treat
than others?
For some reason, certain parts of the body, including the
hands, feet, and some areas where the hair has turned white, do seem to be
harder to treat than other areas. However, many of today's brightest experts in
the treatment of Leucoderma, maintain that ANY Leucoderma spot can be
repigmented, and even hair repigmented, with enough work and dedication. Those
who have Leucoderma should contact LEUCODERMA AWARENESS MOVEMENT and avail
result oriented HERBAL treatment.
42. Can tanning beds (solariums) be used in place of PUVA or
Narrow Band UVB?
Many experts suggest that tanning beds (also known as
tanning booths and solariums) not be used in place of PUVA lamps or Narrow Band
UVB lamps or even natural sunlight. The problem with tanning beds is that the
lamps in these devices usually emit a much stronger, broader spectrum of UV
rays, and may not be as safe or effective for people treating Leucoderma, and
may result in severe burning or other side effects.
43. Can the genitals be treated?
Obviously a sensitive subject, but many people with
Leucoderma have the same question.. The reality is, a substancial number of
people with Leucoderma (estimated at 30 to 40 percent) do experience at least
some (if not extensive) Leucoderma on their genitals. For many people, this can
have an effect on their own esteem, and in their social and sexual lives.The
genitalia can be treated and are in many cases responsive to treatment.
Traditional therapies, such as Herbal medicines and food restriction, have been
used to treat the genitals, both male and female.
44. Is it safe to use all treatments on the face and around
the eyes?
Medicines suggested in traditional therapies have no harm.As
with all ointments and creams, you want to discuss this with your doctor. The
greatest risk to the eyes from Leucoderma treatment is UV exposure. Prior to
any treatment with UV light, it is wise to have a full Ophthalmic exam.
45. Once a spot repigments, is it permanent? Will I have to
treat my Leucoderma forever?
Right now,(in allopathy) the products available for treating
Leucoderma, seem to be addressing the symptom of Leucoderma (the spots), and
not the underlying cause, which we still don't completely understand. Once a
spot has been repigmented, some people report that the new pigment lasts a long
time, and many do not report any relapse of that spot. Some affected feel that
if you can get a spot to "close," meaning, to be repigmented
completely to the naked eye, that it will have a better chance of staying
repigmented. Still, a significant number of people report that after
repigmenting, and then stopping treatment, that over time, from a few months to
a decade or longer, the areas start to lose pigment again.
At the same time, the alternative practitioners understood
well the underlying cause of Leucoderma. Therefore, you can begin herbal based
treatment by Indian Medicine practitioners as soon as possible..( you can avail
treatment from LEUCODERMA CLINIC run by LEUCODERMA AWARENESS MOVEMENT.) This is
also something important to consider. we treat the CAUSE of our Leucoderma,
rather than just the symptoms.
46. Why bother treating at all if permanence of
repigmentation is not guaranteed?
This is a common thought for those with Leucoderma. Why
should we attempt to treat at all, and spend the money, if the permanence of
our new pigment is not guaranteed? There are several reasons. First, for many
people, simply making some attempt to repigment, in of itself, is a powerful
emotional tool in dealing with their Leucoderma. Second, it is clear that the
larger area of vitiligo, or the more extensive vitiligo is on a person, the
harder it may be, and the longer it may take to repigment.
47. What if my health insurance won't cover my Leucoderma
treatments?
Many health insurance companies will initially reject
treatments for Leucoderma or will approve only some, because they claim the
condition is only cosmetic. Of course we know that's not fully true. The key
with insurance companies, is to be persistent until you achieve success. Until
health insurance companies universally begin accepting Leucoderma as a
legitimate medical condition that affects psychological and physical
well-being, in addition to susceptibility to sunburn, this is how it must be
done.The first step, is to have your doctor write a letter to the insurance
company, explaining Leucoderma, explaining the psycho-social effect, and the
physical risks of Leucoderma, such as serious sunburn. This is often
sufficient, but it will be more convincing if you follow up with a letter of
your own to the health insurance approval dept. Sometimes it will take more
letters, phone calls, and supporting evidence, but if you are persistent, most insurance
companies, will eventually give in, rather than have to receive any more
letters and calls from you.
48. What research is being done on Leucoderma?
There is probably more research being conducted today in the
area of Leucoderma, than ever before. From the genetic basis of autoimmune
disorders, to the structure of the skin, and understanding the immune system,
studies are now being conducted which may yield more information about the
nature and causes of Leucoderma, and how to treat it more effectively.
49. How can I help?
LEUCODERMA AWARENESS MOVEMENT committed to supporting those
affected by Leucoderma raising awareness, promoting research, and discussing
effective treatments until a solution is found.. You can help support our
efforts in various level. Please call LEUCODERMA AWARENESS MOVEMENT.
50. Will they ever find a treatment or a cure that works
well for everyone?
Because people are different, and because there are thought
to be many different causes of Leucoderma, different treatments work better for
different people.
51. Are there cosmetics available to cover Leucoderma spots?
Yes, there are many products out there to provide excellent
camouflage of Leucoderma spots. Some people prefer traditional waterproof
makeup, designed to match every skin tone, and which can be applied to the
spots only. Though they are waterproof, they are not always friction proof, and
some men will not wear them. These types of covers are available in every skin
tone, from very fair to dark black.
52. Is it true that I can make my own safe skin-colored
stain to cover the spots?
Yes! Some affected of Leucoderma have created their own safe
homemade skin stain, made entirely out of herbals and ordinary Food Coloring.
By mixing the ingredients together, a brownish color results, and the tone can
easily be adjusted to match your skin.
53. Is it safe for someone with Leucoderma to use hair dyes
or bleaches?
No, it is not safe. Experts recommend that if you have
Leucoderma, you should avoid hair colorings and bleaches. Chemicals in these
products called Phenols may cause the onset or further spreading of Leucoderma.
Temporary hair colourings however, such as henna, which do not contain phenols
or phenol derivatives, are generally accepted as safe. When in doubt, you
should consult with your physician.
54. Should I use sunscreen?
It is always a good idea for people with Leucoderma to use
sunscreen,(Better use Umbrella) whenever they will be spending more than a few
minutes in the sun. Besides the need to protect the skin from severe sunburn,
sunscreen will keep non-Leucoderma affected areas from tanning, thus helping
you to avoid the contrast that results between tanned areas, and Leucoderma
spots.
55. What about sun-protective clothing?
Sun protective clothing can be a good addition or
alternative to using sunscreens. Since sun protective clothing is an easy way
to protect your skin from the sun without using chemicals such as those found
in sunscreens, it is becoming more popular. This clothing is rated by a UPF (ultraviolet
protection factor) rather than a SPF (sun protection factor), as it protects
from both UVA and UVB rays. A garment with a UPF of 50 would block 98% of all
UVA and UVB rays. Sun protective clothing can be found for men, women, and
children, along with hats and sun protective swimwear.
56. How do I deal with the emotional issues of Leucoderma?
The change in appearance caused by Leucoderma can affect a
person's emotional and psychological well-being and may create difficulty in
professional and social situations. People with Leucoderma can experience
emotional stress, particularly if Leucoderma develops on visible areas of the
body, such as the face, hands, arms, feet, or on the genitals. Adolescents, who
are often particularly concerned about their appearance, can be devastated by
widespread Leucoderma. Some people who have Leucoderma feel embarrassed,
ashamed, depressed, or worried about how others will react.Several strategies
can help a person cope with Leucoderma. First, it is important to find a doctor
who is knowledgeable about Leucoderma and takes the disorder seriously. The
doctor should also be a good listener and be able to provide emotional support.
Affected should also learn as much as possible about the disorder and treatment
choices so that they can participate in making important decisions about
medical care. LEUCODERMA AWARENESS MOVEMENT provides counseling and treatment
through dedicated professional of this field.Talking with other people who have
leucoderma can help a person cope with the disorder. LEUCODERMA AWARENESS
MOVEMENT provides AWARENESS DOCUMENTARY, PAMPLETS,BOOKLETS for this very
purpose, and most members here have found them an invaluable source of support.
Relatives, family and friends are another important source of support.Finally,
counseling with a registered practitioners can help you examine your fears,
improve your self esteem, and find ways to deal with the emotional and social
issues that everyone with Leucoderma faces.
57. People stare at my spots. I am embarrassed by my
Leucoderma. Is there anything I can do?
First, understand that to most people, Leucoderma is
unusual, and perhaps a bit unsettling. Do not be afraid to tell people what it
is, especially children. Kids are pretty smart these days, and everyone can
understand if you explain that Leucoderma is a condition in which the immune
system sees the pigment cells as foreign bodies, and attacks them (our best
explanation). Explain that it does not hurt, and that it is a genetic
condition, and is not contagious.Finally, try to maintain a normal lifestyle.
If you enjoy sports, or swimming, then you should continue to engage in these
activities (remembering sunscreen where appropriate). Don't avoid social
situations and parties - these are good for your psychological well-being. In
the old days, many people thought Leucoderma was the result of burns or
chemical spills. But people are becoming more aware about Leucoderma and it
seems that almost everyone knows someone with the condition.
58. How do I explain Leucoderma to people? Should I even
bother?
We suggest that you be honest and open, and explain to
people that Leucoderma is a genetic condition, in which the body's immune
system sees pigment cells as foreign bodies, and attacks them. Explain that it
is a rather common condition, that it does not hurt or itch, and that it is not
contagious. Finally, explain to them that treatment for the condition is
improving. When they realize that this is a condition just like every other
miserable condition humans inherit, they are less likely to be afraid of it.
59. I have a child with Leucoderma. What should I do?
Children usually cope best with Leucoderma when their
parent(s) is/are prepared to talk about the condition as openly and truthfully
as possible. To pretend you haven't noticed something so obvious may make it
difficult for your child to talk to you about it. Because this is often so
difficult for parents to cope with, especially as relates to other children, it
is important to talk with teachers, and to be conscious if your child is being
teased or bullied. Support your child, and encourage them to get involve with
activities and hobbies. Teach them that it is OK to be different, and that it
doesn't make them any less important. An useful documentary on Leucoderma
awareness available at LEUCODERMA AWARENESS MOVEMENT completely free of cost ,
get it and ask your children to watch.
60. I am afraid I might lose my job because of my
Leucoderma. What should I do?
Under our land of law, all citizens are protected from
discrimination in their work or from being fired based on medical conditions or
illness. If you feel that you have been discriminated against because of your
Leucoderma, then you should consult an advocate (or contact LEUCODERMA
AWARENESS MOVEMENT ) specializing in labour law.
61. I'm afraid my spouse or significant other won't be
attracted to me because of my Leucoderma. What should I do?
Relationship issues are without question one of the most
important social problems that come up with Leucoderma. People with Leucoderma
are frequently concerned that they will no longer be attractive to their
significant others, partners or spouses. What we find to be the case most
often, is that the partners of people with Leucoderma are not terribly concerned
about the Leucoderma, and often say that it does not bother them. So learn to
communicate with your partner or spouse, express your concerns and fears.
Another possibility is to make yourself attractive in other ways.
62. I feel self-conscious and uncomfortable at places like
the beach ,marriage halls, swimming pools and other social gatherings What can
I do?
Don't avoid the beach, social gatherings or swimming pools
just because of your Leucoderma. Do not allow Leucoderma to interfere with the
joy of living. From a physical aspect, it may make sense to go swimming and to
the beach in the later afternoons, when the sun is not as strong. If it makes
you feel better, wear stain or waterproof makeup cover. And if people ask about
the Leucoderma, you should explain it to them just as indicated above.
63. How do I find a good counselor or psychotherapist to
help me with the emotional issues?
When ever you feel distressed feel free to call LEUCODERMA
AWARENESS MOVEMENT. Second to that, you should try to take medicine to
disappear the conditions which affect your appearance. People at LEUCODERMA
AWARENESS MOVEMENT help you to deal with Leucoderma, both inwardly and
socially, and can work with you to maintain your self-esteem and pride.
POSTED BY LEUCODERMA AWARENESS
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